TY - JOUR
T1 - Sample genetic policy language for research conducted with native communities
AU - Burhansstipanov, Linda
AU - Bemis, Lynne
AU - Kaur, Judith S.
AU - Bemis, Gordon
PY - 2005
Y1 - 2005
N2 - Backgraound. We have been repeatedly asked to clarify genetic issues that have cultural ramifications for Native communities. Method. In the following commentary, we explain selected genetic issues that may vary among tribal nations; nonetheless, scientists should allocate sufficient time to meet with the tribal leaders and/or members of the tribal institutional review board prior to designing a genetic study to learn how selected issues are perceived by that specific tribal nation. Results. Tribal nations generally encourage and mandate community-based participatory research methodology. Conclusions. We have included in this commentary draft language for study protocols to support researchers and tribal nations when developing studies pertaining to genetic issues.
AB - Backgraound. We have been repeatedly asked to clarify genetic issues that have cultural ramifications for Native communities. Method. In the following commentary, we explain selected genetic issues that may vary among tribal nations; nonetheless, scientists should allocate sufficient time to meet with the tribal leaders and/or members of the tribal institutional review board prior to designing a genetic study to learn how selected issues are perceived by that specific tribal nation. Results. Tribal nations generally encourage and mandate community-based participatory research methodology. Conclusions. We have included in this commentary draft language for study protocols to support researchers and tribal nations when developing studies pertaining to genetic issues.
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U2 - 10.1207/s15430154jce2001s_12
DO - 10.1207/s15430154jce2001s_12
M3 - Review article
C2 - 15916522
AN - SCOPUS:18844408054
SN - 0885-8195
VL - 20
SP - 52
EP - 57
JO - Journal of Cancer Education
JF - Journal of Cancer Education
IS - SUPPL. 1
ER -