Sample genetic policy language for research conducted with native communities

Linda Burhansstipanov, Lynne Bemis, Judith S Kaur, Gordon Bemis

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

Backgraound. We have been repeatedly asked to clarify genetic issues that have cultural ramifications for Native communities. Method. In the following commentary, we explain selected genetic issues that may vary among tribal nations; nonetheless, scientists should allocate sufficient time to meet with the tribal leaders and/or members of the tribal institutional review board prior to designing a genetic study to learn how selected issues are perceived by that specific tribal nation. Results. Tribal nations generally encourage and mandate community-based participatory research methodology. Conclusions. We have included in this commentary draft language for study protocols to support researchers and tribal nations when developing studies pertaining to genetic issues.

Original languageEnglish (US)
Pages (from-to)52-57
Number of pages6
JournalJournal of Cancer Education
Volume20
Issue numberSUPPL. 1
StatePublished - Mar 2005

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Community-Based Participatory Research
Research Ethics Committees
Population Groups
Developing Countries
Research Design
Language
Research Personnel
Research

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Oncology

Cite this

Sample genetic policy language for research conducted with native communities. / Burhansstipanov, Linda; Bemis, Lynne; Kaur, Judith S; Bemis, Gordon.

In: Journal of Cancer Education, Vol. 20, No. SUPPL. 1, 03.2005, p. 52-57.

Research output: Contribution to journalArticle

Burhansstipanov, L, Bemis, L, Kaur, JS & Bemis, G 2005, 'Sample genetic policy language for research conducted with native communities', Journal of Cancer Education, vol. 20, no. SUPPL. 1, pp. 52-57.
Burhansstipanov, Linda ; Bemis, Lynne ; Kaur, Judith S ; Bemis, Gordon. / Sample genetic policy language for research conducted with native communities. In: Journal of Cancer Education. 2005 ; Vol. 20, No. SUPPL. 1. pp. 52-57.
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