Management of Adolescent–Parent Dyads’ Discordance for Willingness to Participate in a Reproductive Health Clinical Trial

Jenny K.R. Francis, Lauren Dapena Fraiz, Ariel M. de Roche, Marina Catallozzi, Carmen Radecki Breitkopf, Susan L. Rosenthal

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

The objective of this study is to understand the resolution of discordance between adolescent–parent dyads about participation in research. Adolescent (14-17 years) and parent dyads were recruited from NYC pediatric clinics to assess attitudes toward research participation. A subset of dyads participated in videotaped discussions about participation in a hypothetical study. Videos from dyads that held strongly discordant opinions about participation (n = 30) were content-coded and analyzed using a thematic framework approach. Strategies used to resolve discordance included asserting authority, granting autonomy, or recognizing inaccurate assumptions using a variety of communication behaviors. Missed opportunities to enroll initially discordant dyads may be avoided by allowing time for adolescents and parents to elicit information, clarify a situation, or convince the other.

Original languageEnglish (US)
Pages (from-to)42-49
Number of pages8
JournalJournal of Empirical Research on Human Research Ethics
Volume13
Issue number1
DOIs
StatePublished - Feb 1 2018

Fingerprint

Reproductive Health
dyad
Health
Clinical Trials
Pediatrics
health
management
Research
participation
Parents
Communication
parents
adolescent
communication behavior
video
autonomy

Keywords

  • adolescent
  • consent
  • decision making
  • discordance
  • dyads
  • parent
  • qualitative
  • reproductive health

ASJC Scopus subject areas

  • Social Psychology
  • Education
  • Communication
  • Law

Cite this

Management of Adolescent–Parent Dyads’ Discordance for Willingness to Participate in a Reproductive Health Clinical Trial. / Francis, Jenny K.R.; Dapena Fraiz, Lauren; de Roche, Ariel M.; Catallozzi, Marina; Radecki Breitkopf, Carmen; Rosenthal, Susan L.

In: Journal of Empirical Research on Human Research Ethics, Vol. 13, No. 1, 01.02.2018, p. 42-49.

Research output: Contribution to journalArticle

Francis, Jenny K.R. ; Dapena Fraiz, Lauren ; de Roche, Ariel M. ; Catallozzi, Marina ; Radecki Breitkopf, Carmen ; Rosenthal, Susan L. / Management of Adolescent–Parent Dyads’ Discordance for Willingness to Participate in a Reproductive Health Clinical Trial. In: Journal of Empirical Research on Human Research Ethics. 2018 ; Vol. 13, No. 1. pp. 42-49.
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