“I Can’t Take off My Shirt or Do My Own Hair”—A Qualitative Investigation of the Symptoms and Impact Experience of Children and Adolescents with Fibrodysplasia Ossificans Progressiva (FOP)

Jessica T. Markowitz, Diana Rofail, Gerrit Vandenberg, Jessica Baldasaro, Robert J. Sanchez, Robert J. Pignolo, Richard Keen, Michelle Davis, Patrick Marquis

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Medicine & Life Sciences