TY - JOUR
T1 - Assessing follow-up care after prostate-specific antigen elevation in American Indian / Alaska native men
T2 - A partnership approach
AU - Tilburt, Jon C.
AU - James, Katherine M.
AU - Koller, Kathryn
AU - Lanier, Anne P.
AU - Hall, Ingrid J.
AU - Smith, Judith Lee
AU - Ekwueme, Donatus U.
AU - Nicometo, Ann M.
AU - Petersen, Wesley O.
N1 - Copyright:
Copyright 2013 Elsevier B.V., All rights reserved.
PY - 2013
Y1 - 2013
N2 - Background: Although many studies conducted among American Indian and Alaska Native (AI/AN) populations may help to advance medical science and lead to improvements in health and health care, historically few have endeavored to share their findings, benefits, and/or expected outcomes with the communities in which they are conducted. This perceived lack of responsiveness has contributed to a perception in some AI/AN communities that researchers are disrespectful and may not make community needs a priority. Objectives: In the context of a study assessing the care received by AI/AN men with incident elevated prostatespecific antigen (PSA) levels, this paper describes our experience building collaborative relationships, planning, conducting analyses, and disseminating findings with four AI/AN communities. Methods: We established formal partnerships with three Northern Plains AI communities and one AN tribal health organization, convened a 12-member Community Advisory Board (CAB), and obtained study approvals from all necessary tribal and institutional review bodies before implementing our study. A menu of options for study implementation was given to key collaborators at each site. CAB members and collaborating tribes contributed to each phase of the study. After data analysis, results were shared with tribal and institutional leaders. Lessons Learned: Face-to-face communication, flexibility, and adaptability, as well as clearly defined, respectful roles contributed to the success of the study on the part of both the researchers and community partners. Conclusions: This study demonstrates the importance and feasibility of forging collaborative relationships with AI/AN community leaders in regions of Alaska and the Northern Plains in cancer control initiatives for AI/AN men.
AB - Background: Although many studies conducted among American Indian and Alaska Native (AI/AN) populations may help to advance medical science and lead to improvements in health and health care, historically few have endeavored to share their findings, benefits, and/or expected outcomes with the communities in which they are conducted. This perceived lack of responsiveness has contributed to a perception in some AI/AN communities that researchers are disrespectful and may not make community needs a priority. Objectives: In the context of a study assessing the care received by AI/AN men with incident elevated prostatespecific antigen (PSA) levels, this paper describes our experience building collaborative relationships, planning, conducting analyses, and disseminating findings with four AI/AN communities. Methods: We established formal partnerships with three Northern Plains AI communities and one AN tribal health organization, convened a 12-member Community Advisory Board (CAB), and obtained study approvals from all necessary tribal and institutional review bodies before implementing our study. A menu of options for study implementation was given to key collaborators at each site. CAB members and collaborating tribes contributed to each phase of the study. After data analysis, results were shared with tribal and institutional leaders. Lessons Learned: Face-to-face communication, flexibility, and adaptability, as well as clearly defined, respectful roles contributed to the success of the study on the part of both the researchers and community partners. Conclusions: This study demonstrates the importance and feasibility of forging collaborative relationships with AI/AN community leaders in regions of Alaska and the Northern Plains in cancer control initiatives for AI/AN men.
KW - Community health partnerships
KW - Community-based participatory research
KW - Health care quality and access
KW - Urogenital neoplasms
UR - http://www.scopus.com/inward/record.url?scp=84883896732&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84883896732&partnerID=8YFLogxK
U2 - 10.1353/cpr.2013.0019
DO - 10.1353/cpr.2013.0019
M3 - Article
C2 - 23793246
AN - SCOPUS:84883896732
SN - 1557-0541
VL - 7
SP - 153
EP - 161
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
IS - 2
ER -