Acquisition, analysis, and sharing of data in 2015 and beyond: A survey of the landscape a conference report from the American heart association data summit 2015

Elliott M. Antman, Emelia J. Benjamin, Robert A. Harrington, Steven R. Houser, Eric D. Peterson, Mary Ann Bauman, Nancy Brown, Vincent Bufalino, Robert M. Califf, Mark A. Creager, Alan Daugherty, David L. Demets, Bernard P. Dennis, Shahram Ebadollahi, Mariell Jessup, Michael S. Lauer, Bernard Lo, Calum A. MacRae, Michael V. McConnell, Alexa T. McCrayMichelle M. Mello, Eric Mueller, Jane W. Newburger, Sally Okun, Milton Packer, Anthony Philippakis, Peipei Ping, Prad Prasoon, Veronique Lee Roger, Steve Singer, Robert Temple, Melanie B. Turner, Kevin Vigilante, John Warner, Patrick Wayte

Research output: Contribution to journalArticle

25 Citations (Scopus)

Abstract

Background--A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies in the Big Data area. The concepts evolving from this forum may also inform other fields of medicine and science. Methods and Results--A total of 47 participants representing stakeholders from 7 domains (patients, basic scientists, clinical investigators, population researchers, clinicians and healthcare system administrators, industry, and regulatory authorities) participated in the conference. Presentation topics included updates on data as viewed from conventional medical and nonmedical sources, building and using Big Data repositories, articulation of the goals of data sharing, and principles of responsible data sharing. Facilitated breakout sessions were conducted to examine what each of the 7 stakeholder domains wants from Big Data under ideal circumstances and the possible roles that the AHA might play in meeting their needs. Important areas that are high priorities for further study regarding Big Data include a description of the methodology of how to acquire and analyze findings, validation of the veracity of discoveries from such research, and integration into investigative and clinical care aspects of future cardiovascular and stroke medicine. Potential roles that the AHA might consider include facilitating a standards discussion (eg, tools, methodology, and appropriate data use), providing education (eg, healthcare providers, patients, investigators), and helping build an interoperable digital ecosystem in cardiovascular and stroke science. Conclusion--There was a consensus across stakeholder domains that Big Data holds great promise for revolutionizing the way cardiovascular and stroke research is conducted and clinical care is delivered; however, there is a clear need for the creation of a vision of how to use it to achieve the desired goals. Potential roles for the AHA center around facilitating a discussion of standards, providing education, and helping establish a cardiovascular digital ecosystem. This ecosystem should be interoperable and needs to interface with the rapidly growing digital object environment of the modern-day healthcare system.

Original languageEnglish (US)
Article numbere002810
JournalJournal of the American Heart Association
Volume4
Issue number11
DOIs
StatePublished - Nov 1 2015

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American Heart Association
Information Dissemination
Myocardial Infarction
Ecosystem
Research Personnel
Medicine
Delivery of Health Care
Education
Administrative Personnel
Research
Health Personnel
Industry
Surveys and Questionnaires
Population

Keywords

  • AHA Scientific Statements
  • Clinical trials
  • Data
  • Epidemiology
  • Ethics
  • Mobile health
  • Preclinical

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

Cite this

Acquisition, analysis, and sharing of data in 2015 and beyond : A survey of the landscape a conference report from the American heart association data summit 2015. / Antman, Elliott M.; Benjamin, Emelia J.; Harrington, Robert A.; Houser, Steven R.; Peterson, Eric D.; Bauman, Mary Ann; Brown, Nancy; Bufalino, Vincent; Califf, Robert M.; Creager, Mark A.; Daugherty, Alan; Demets, David L.; Dennis, Bernard P.; Ebadollahi, Shahram; Jessup, Mariell; Lauer, Michael S.; Lo, Bernard; MacRae, Calum A.; McConnell, Michael V.; McCray, Alexa T.; Mello, Michelle M.; Mueller, Eric; Newburger, Jane W.; Okun, Sally; Packer, Milton; Philippakis, Anthony; Ping, Peipei; Prasoon, Prad; Roger, Veronique Lee; Singer, Steve; Temple, Robert; Turner, Melanie B.; Vigilante, Kevin; Warner, John; Wayte, Patrick.

In: Journal of the American Heart Association, Vol. 4, No. 11, e002810, 01.11.2015.

Research output: Contribution to journalArticle

Antman, EM, Benjamin, EJ, Harrington, RA, Houser, SR, Peterson, ED, Bauman, MA, Brown, N, Bufalino, V, Califf, RM, Creager, MA, Daugherty, A, Demets, DL, Dennis, BP, Ebadollahi, S, Jessup, M, Lauer, MS, Lo, B, MacRae, CA, McConnell, MV, McCray, AT, Mello, MM, Mueller, E, Newburger, JW, Okun, S, Packer, M, Philippakis, A, Ping, P, Prasoon, P, Roger, VL, Singer, S, Temple, R, Turner, MB, Vigilante, K, Warner, J & Wayte, P 2015, 'Acquisition, analysis, and sharing of data in 2015 and beyond: A survey of the landscape a conference report from the American heart association data summit 2015', Journal of the American Heart Association, vol. 4, no. 11, e002810. https://doi.org/10.1161/JAHA.115.002810
Antman, Elliott M. ; Benjamin, Emelia J. ; Harrington, Robert A. ; Houser, Steven R. ; Peterson, Eric D. ; Bauman, Mary Ann ; Brown, Nancy ; Bufalino, Vincent ; Califf, Robert M. ; Creager, Mark A. ; Daugherty, Alan ; Demets, David L. ; Dennis, Bernard P. ; Ebadollahi, Shahram ; Jessup, Mariell ; Lauer, Michael S. ; Lo, Bernard ; MacRae, Calum A. ; McConnell, Michael V. ; McCray, Alexa T. ; Mello, Michelle M. ; Mueller, Eric ; Newburger, Jane W. ; Okun, Sally ; Packer, Milton ; Philippakis, Anthony ; Ping, Peipei ; Prasoon, Prad ; Roger, Veronique Lee ; Singer, Steve ; Temple, Robert ; Turner, Melanie B. ; Vigilante, Kevin ; Warner, John ; Wayte, Patrick. / Acquisition, analysis, and sharing of data in 2015 and beyond : A survey of the landscape a conference report from the American heart association data summit 2015. In: Journal of the American Heart Association. 2015 ; Vol. 4, No. 11.
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T2 - A survey of the landscape a conference report from the American heart association data summit 2015

AU - Antman, Elliott M.

AU - Benjamin, Emelia J.

AU - Harrington, Robert A.

AU - Houser, Steven R.

AU - Peterson, Eric D.

AU - Bauman, Mary Ann

AU - Brown, Nancy

AU - Bufalino, Vincent

AU - Califf, Robert M.

AU - Creager, Mark A.

AU - Daugherty, Alan

AU - Demets, David L.

AU - Dennis, Bernard P.

AU - Ebadollahi, Shahram

AU - Jessup, Mariell

AU - Lauer, Michael S.

AU - Lo, Bernard

AU - MacRae, Calum A.

AU - McConnell, Michael V.

AU - McCray, Alexa T.

AU - Mello, Michelle M.

AU - Mueller, Eric

AU - Newburger, Jane W.

AU - Okun, Sally

AU - Packer, Milton

AU - Philippakis, Anthony

AU - Ping, Peipei

AU - Prasoon, Prad

AU - Roger, Veronique Lee

AU - Singer, Steve

AU - Temple, Robert

AU - Turner, Melanie B.

AU - Vigilante, Kevin

AU - Warner, John

AU - Wayte, Patrick

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N2 - Background--A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies in the Big Data area. The concepts evolving from this forum may also inform other fields of medicine and science. Methods and Results--A total of 47 participants representing stakeholders from 7 domains (patients, basic scientists, clinical investigators, population researchers, clinicians and healthcare system administrators, industry, and regulatory authorities) participated in the conference. Presentation topics included updates on data as viewed from conventional medical and nonmedical sources, building and using Big Data repositories, articulation of the goals of data sharing, and principles of responsible data sharing. Facilitated breakout sessions were conducted to examine what each of the 7 stakeholder domains wants from Big Data under ideal circumstances and the possible roles that the AHA might play in meeting their needs. Important areas that are high priorities for further study regarding Big Data include a description of the methodology of how to acquire and analyze findings, validation of the veracity of discoveries from such research, and integration into investigative and clinical care aspects of future cardiovascular and stroke medicine. Potential roles that the AHA might consider include facilitating a standards discussion (eg, tools, methodology, and appropriate data use), providing education (eg, healthcare providers, patients, investigators), and helping build an interoperable digital ecosystem in cardiovascular and stroke science. Conclusion--There was a consensus across stakeholder domains that Big Data holds great promise for revolutionizing the way cardiovascular and stroke research is conducted and clinical care is delivered; however, there is a clear need for the creation of a vision of how to use it to achieve the desired goals. Potential roles for the AHA center around facilitating a discussion of standards, providing education, and helping establish a cardiovascular digital ecosystem. This ecosystem should be interoperable and needs to interface with the rapidly growing digital object environment of the modern-day healthcare system.

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