The impact of privacy protections on recruitment in a multicenter stroke genetics study

D. T. Chen; B. B. Worrall; R. D. Brown; T. G. Brott; B. M. Kissela; T. S. Olson; S. S. Rich; James F. Meschia

doi:10.1212/01.WNL.0000152042.07414.CC

The impact of privacy protections on recruitment in a multicenter stroke genetics study

D. T. Chen, B. B. Worrall, R. D. Brown, T. G. Brott, B. M. Kissela, T. S. Olson, S. S. Rich, James F. Meschia

Research output: Contribution to journal › Review article › peer-review

10 Scopus citations

Abstract

The authors reviewed the recruitment of stroke-affected sibling pairs using a letter-based, proband-initiated contact strategy. The authors randomly sampled 99 proband enrollment forms (Phase 1) and randomly sampled 50 sibling reply cards (Phase 2). The sibling response rate was 30.6%, for a pedigree response rate of 58%. Of the siblings who replied, 96% authorized further contact. Median time from proband enrollment to pedigree DNA banking, which required 3+ probands, was 134 days.

Original language	English (US)
Pages (from-to)	721-724
Number of pages	4
Journal	Neurology
Volume	64
Issue number	4
DOIs	https://doi.org/10.1212/01.WNL.0000152042.07414.CC
State	Published - Feb 22 2005

ASJC Scopus subject areas

Clinical Neurology

Access to Document

10.1212/01.WNL.0000152042.07414.CC

Cite this

@article{174ab7402a954755aeba0eb2552e43bc,

title = "The impact of privacy protections on recruitment in a multicenter stroke genetics study",

abstract = "The authors reviewed the recruitment of stroke-affected sibling pairs using a letter-based, proband-initiated contact strategy. The authors randomly sampled 99 proband enrollment forms (Phase 1) and randomly sampled 50 sibling reply cards (Phase 2). The sibling response rate was 30.6%, for a pedigree response rate of 58%. Of the siblings who replied, 96% authorized further contact. Median time from proband enrollment to pedigree DNA banking, which required 3+ probands, was 134 days.",

author = "Chen, {D. T.} and Worrall, {B. B.} and Brown, {R. D.} and Brott, {T. G.} and Kissela, {B. M.} and Olson, {T. S.} and Rich, {S. S.} and Meschia, {James F.}",

year = "2005",

month = feb,

day = "22",

doi = "10.1212/01.WNL.0000152042.07414.CC",

language = "English (US)",

volume = "64",

pages = "721--724",

journal = "Neurology",

issn = "0028-3878",

publisher = "Lippincott Williams and Wilkins",

number = "4",

}

TY - JOUR

T1 - The impact of privacy protections on recruitment in a multicenter stroke genetics study

AU - Chen, D. T.

AU - Worrall, B. B.

AU - Brown, R. D.

AU - Brott, T. G.

AU - Kissela, B. M.

AU - Olson, T. S.

AU - Rich, S. S.

AU - Meschia, James F.

PY - 2005/2/22

Y1 - 2005/2/22

N2 - The authors reviewed the recruitment of stroke-affected sibling pairs using a letter-based, proband-initiated contact strategy. The authors randomly sampled 99 proband enrollment forms (Phase 1) and randomly sampled 50 sibling reply cards (Phase 2). The sibling response rate was 30.6%, for a pedigree response rate of 58%. Of the siblings who replied, 96% authorized further contact. Median time from proband enrollment to pedigree DNA banking, which required 3+ probands, was 134 days.

AB - The authors reviewed the recruitment of stroke-affected sibling pairs using a letter-based, proband-initiated contact strategy. The authors randomly sampled 99 proband enrollment forms (Phase 1) and randomly sampled 50 sibling reply cards (Phase 2). The sibling response rate was 30.6%, for a pedigree response rate of 58%. Of the siblings who replied, 96% authorized further contact. Median time from proband enrollment to pedigree DNA banking, which required 3+ probands, was 134 days.

UR - http://www.scopus.com/inward/record.url?scp=13844316614&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=13844316614&partnerID=8YFLogxK

U2 - 10.1212/01.WNL.0000152042.07414.CC

DO - 10.1212/01.WNL.0000152042.07414.CC

M3 - Review article

C2 - 15728301

AN - SCOPUS:13844316614

SN - 0028-3878

VL - 64

SP - 721

EP - 724

JO - Neurology

JF - Neurology

IS - 4

ER -

The impact of privacy protections on recruitment in a multicenter stroke genetics study

Abstract

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this