The Feasibility and Educational Value of Hear My Voice, a Chaplain-Led Spiritual Life Review Process for Patients with Brain Cancers and Progressive Neurologic Conditions

Katherine M. Piderman, Carmen Radecki Breitkopf, Sarah M. Jenkins, Laura A. Lovejoy, Yvette M. Dulohery, Dean V. Marek, Heidi L. Durland, Debra L. Head, Spence W. Swanson, James T. Hogg, John L. Evans, Scott E. Jorgenson, Laura J. Bunkowski, Karl L. Jones, Terin T. Euerle, Gracia M. Kwete, Keith A. Miller, Jacob R. Morris, Timothy J. Yoder, Maria I. LapidAminah Jatoi

Research output: Contribution to journalArticle

8 Scopus citations

Abstract

Research continues to establish the importance of spirituality for many persons with medical illnesses. This paper describes a pilot study titled, “Hear My Voice,” designed to provide an opportunity for persons with progressive neurologic illnesses, including brain tumors and other neurodegenerative diseases, to review and discuss their spirituality with a board-certified chaplain, and to prepare a spiritual legacy document (SLD). First, we provide background information that underscores the importance of such a project for this patient population that is particularly vulnerable to cognitive impairment and communication difficulties. Second, we provide detailed methodology, including the semi-structured interview format used, the development of the SLD, and an overview of responses from participants and investigators. We also describe the quantitative and qualitative approaches to analysis taken with the aim of developing scientific validation in support of the Hear My Voice project.

Original languageEnglish (US)
Pages (from-to)209-212
Number of pages4
JournalJournal of Cancer Education
Volume30
Issue number2
DOIs
StatePublished - Jun 1 2015

Keywords

  • Brain tumors
  • Life review
  • Neurodegenerative diseases
  • Spiritual legacy
  • Spirituality

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health

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