The contractual genome: How direct-to-consumer genomic services may help patients take ownership of their DNA

Morris W. Foster, Richard R Sharp

Research output: Contribution to journalArticle

20 Citations (Scopus)

Abstract

The sequencing and genotyping of personal genomes by commercial services outside traditional clinical settings may help to shape the expectations of research subjects and patients regarding control of and responsibility for the information contained in their DNA. A greater sense of individual ownership of personal genomic information could replace overly complex and paternalistic institutional proxies for the protection of personal genotype and sequence data, and also could encourage research participants and patients to become better educated regarding genetic contributors to disease.

Original languageEnglish (US)
Pages (from-to)399-404
Number of pages6
JournalPersonalized Medicine
Volume5
Issue number4
DOIs
StatePublished - 2008
Externally publishedYes

Fingerprint

Ownership
Genome
Research Subjects
DNA
Proxy
Genotype
Research

Keywords

  • Consumer
  • Ethics
  • Genome-wide
  • Personal genome
  • Privacy
  • Whole-genome

ASJC Scopus subject areas

  • Molecular Medicine
  • Pharmacology
  • Medicine(all)

Cite this

The contractual genome : How direct-to-consumer genomic services may help patients take ownership of their DNA. / Foster, Morris W.; Sharp, Richard R.

In: Personalized Medicine, Vol. 5, No. 4, 2008, p. 399-404.

Research output: Contribution to journalArticle

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