Stories for change

Development of a diabetes digital storytelling intervention for refugees and immigrants to Minnesota using qualitative methods Health behaviour, health promotion and society

Jane W. Njeru, Christi Ann Patten, Marcelo M K Hanza, Tabetha A. Brockman, Jennifer L. Ridgeway, Jennifer A. Weis, Matthew M Clark, Miriam Goodson, Ahmed Osman, Graciela Porraz-Capetillo, Abdullah Hared, Allison Myers, Irene Gaw Sia, Mark L. Wieland

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

Background: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations. Methods: We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories. Results: Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management. Conclusions: This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships.

Original languageEnglish (US)
Article number1311
JournalBMC Public Health
Volume15
Issue number1
DOIs
StatePublished - Dec 29 2015

Fingerprint

Community-Based Participatory Research
Refugees
Health Behavior
Health Promotion
Hispanic Americans
Self Care
Focus Groups
Health Education
Type 2 Diabetes Mellitus
Chronic Disease
Exercise
Education
Glucose
Health
Research
Population

Keywords

  • Community-Based Participatory Research
  • Diabetes
  • Digital Storytelling
  • Immigrant
  • Refugee
  • Somali

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Stories for change : Development of a diabetes digital storytelling intervention for refugees and immigrants to Minnesota using qualitative methods Health behaviour, health promotion and society. / Njeru, Jane W.; Patten, Christi Ann; Hanza, Marcelo M K; Brockman, Tabetha A.; Ridgeway, Jennifer L.; Weis, Jennifer A.; Clark, Matthew M; Goodson, Miriam; Osman, Ahmed; Porraz-Capetillo, Graciela; Hared, Abdullah; Myers, Allison; Sia, Irene Gaw; Wieland, Mark L.

In: BMC Public Health, Vol. 15, No. 1, 1311, 29.12.2015.

Research output: Contribution to journalArticle

Njeru, Jane W. ; Patten, Christi Ann ; Hanza, Marcelo M K ; Brockman, Tabetha A. ; Ridgeway, Jennifer L. ; Weis, Jennifer A. ; Clark, Matthew M ; Goodson, Miriam ; Osman, Ahmed ; Porraz-Capetillo, Graciela ; Hared, Abdullah ; Myers, Allison ; Sia, Irene Gaw ; Wieland, Mark L. / Stories for change : Development of a diabetes digital storytelling intervention for refugees and immigrants to Minnesota using qualitative methods Health behaviour, health promotion and society. In: BMC Public Health. 2015 ; Vol. 15, No. 1.
@article{adab0e24260648d2ac08f6e48c4a13ab,
title = "Stories for change: Development of a diabetes digital storytelling intervention for refugees and immigrants to Minnesota using qualitative methods Health behaviour, health promotion and society",
abstract = "Background: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations. Methods: We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories. Results: Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management. Conclusions: This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships.",
keywords = "Community-Based Participatory Research, Diabetes, Digital Storytelling, Immigrant, Refugee, Somali",
author = "Njeru, {Jane W.} and Patten, {Christi Ann} and Hanza, {Marcelo M K} and Brockman, {Tabetha A.} and Ridgeway, {Jennifer L.} and Weis, {Jennifer A.} and Clark, {Matthew M} and Miriam Goodson and Ahmed Osman and Graciela Porraz-Capetillo and Abdullah Hared and Allison Myers and Sia, {Irene Gaw} and Wieland, {Mark L.}",
year = "2015",
month = "12",
day = "29",
doi = "10.1186/s12889-015-2628-y",
language = "English (US)",
volume = "15",
journal = "BMC Public Health",
issn = "1471-2458",
publisher = "BioMed Central",
number = "1",

}

TY - JOUR

T1 - Stories for change

T2 - Development of a diabetes digital storytelling intervention for refugees and immigrants to Minnesota using qualitative methods Health behaviour, health promotion and society

AU - Njeru, Jane W.

AU - Patten, Christi Ann

AU - Hanza, Marcelo M K

AU - Brockman, Tabetha A.

AU - Ridgeway, Jennifer L.

AU - Weis, Jennifer A.

AU - Clark, Matthew M

AU - Goodson, Miriam

AU - Osman, Ahmed

AU - Porraz-Capetillo, Graciela

AU - Hared, Abdullah

AU - Myers, Allison

AU - Sia, Irene Gaw

AU - Wieland, Mark L.

PY - 2015/12/29

Y1 - 2015/12/29

N2 - Background: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations. Methods: We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories. Results: Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management. Conclusions: This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships.

AB - Background: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations. Methods: We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories. Results: Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management. Conclusions: This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships.

KW - Community-Based Participatory Research

KW - Diabetes

KW - Digital Storytelling

KW - Immigrant

KW - Refugee

KW - Somali

UR - http://www.scopus.com/inward/record.url?scp=84952314498&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84952314498&partnerID=8YFLogxK

U2 - 10.1186/s12889-015-2628-y

DO - 10.1186/s12889-015-2628-y

M3 - Article

VL - 15

JO - BMC Public Health

JF - BMC Public Health

SN - 1471-2458

IS - 1

M1 - 1311

ER -