Social Media and Myeloproliferative Neoplasms (MPN): Analysis of Advanced Metrics From the First Year of a New Twitter Community: #MPNSM

Naveen Pemmaraju, Audun Utengen, Vikas Gupta, Jean Jacques Kiladjian, Ruben Mesa, Michael A. Thompson

Research output: Contribution to journalReview article

10 Scopus citations

Abstract

The social media platform Twitter has provided the hematology/oncology community with unprecedented, novel methods of interpersonal communication and increased ability for the dissemination of important updates in a rapidly moving field. The advent, and subsequent success, of disease-specific Twitter communities have further enabled interested healthcare stakeholders to become quickly organized around a unique set of rare medical conditions, such as hematologic malignancies, that, historically, generally lack large amounts of reliable online information. One example is the Twitter community #MPNSM (myeloproliferative neoplasms on social media), which was started approximately one and half years ago and has served as a recognized venue for discussion among many members of the MPN community, including patients, researchers, providers, and advocacy organizations. This article will focus on understanding the impact of the founding of this community via the analysis of advanced Twitter metrics of user experience, from the first year of use for this novel healthcare hashtag.

Original languageEnglish (US)
Pages (from-to)456-461
Number of pages6
JournalCurrent Hematologic Malignancy Reports
Volume11
Issue number6
DOIs
StatePublished - Dec 1 2016

Keywords

  • Disease-specific hashtag
  • Myelofibrosis
  • Myeloproliferative neoplasm
  • Polycythemia vera
  • Social media
  • Twitter

ASJC Scopus subject areas

  • Hematology
  • Oncology
  • Cancer Research

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