Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks

Gloria M. Petersen, Brian Van Ness

Research output: Contribution to journalArticle

3 Scopus citations

Abstract

Research biobanks are heterogeneous and exist to manage diverse biosample types with the goal of facilitating and serving biomedical discovery. The perspectives of biobank managers are reviewed, and the perspectives of two biobank directors, one with experience in institutional biobanks and the other with national cooperative group banks, are presented. Most research biobanks are not designed, nor do they have the resources, to return research results and incidental findings to participants or their families.

Original languageEnglish (US)
Pages (from-to)523-528
Number of pages6
JournalJournal of Law, Medicine and Ethics
Volume43
Issue number3
DOIs
StatePublished - Sep 1 2015

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health Policy

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