PHACE Syndrome: Consensus-Derived Diagnosis and Care Recommendations

Maria C. Garzon, Leon G. Epstein, Geoffrey L. Heyer, Peter C. Frommelt, Darren B. Orbach, Adriane L. Baylis, Francine Blei, Patricia E. Burrows, Sarah L. Chamlin, Robert H. Chun, Christopher P. Hess, Shawna Joachim, Katherine Johnson, Wendy Kim, Marilyn G. Liang, Mohit Maheshwari, Garrett N. McCoy, Denise W. Metry, Priya A. Monrad, Elena PopeJulie Powell, Tor A. Shwayder, Dawn H. Siegel, Megha M. Tollefson, Sudhakar Vadivelu, Sean M. Lew, Ilona J. Frieden, Beth A. Drolet

Research output: Contribution to journalArticle

55 Citations (Scopus)
Original languageEnglish (US)
Pages (from-to)24-33.e2
JournalJournal of Pediatrics
StatePublished - Nov 1 2016


  • aortic coarctation
  • infantile hemangioma
  • PHACES syndrome

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Garzon, M. C., Epstein, L. G., Heyer, G. L., Frommelt, P. C., Orbach, D. B., Baylis, A. L., ... Drolet, B. A. (2016). PHACE Syndrome: Consensus-Derived Diagnosis and Care Recommendations. Journal of Pediatrics, 178, 24-33.e2.

PHACE Syndrome : Consensus-Derived Diagnosis and Care Recommendations. / Garzon, Maria C.; Epstein, Leon G.; Heyer, Geoffrey L.; Frommelt, Peter C.; Orbach, Darren B.; Baylis, Adriane L.; Blei, Francine; Burrows, Patricia E.; Chamlin, Sarah L.; Chun, Robert H.; Hess, Christopher P.; Joachim, Shawna; Johnson, Katherine; Kim, Wendy; Liang, Marilyn G.; Maheshwari, Mohit; McCoy, Garrett N.; Metry, Denise W.; Monrad, Priya A.; Pope, Elena; Powell, Julie; Shwayder, Tor A.; Siegel, Dawn H.; Tollefson, Megha M.; Vadivelu, Sudhakar; Lew, Sean M.; Frieden, Ilona J.; Drolet, Beth A.

In: Journal of Pediatrics, Vol. 178, 01.11.2016, p. 24-33.e2.

Research output: Contribution to journalArticle

Garzon, MC, Epstein, LG, Heyer, GL, Frommelt, PC, Orbach, DB, Baylis, AL, Blei, F, Burrows, PE, Chamlin, SL, Chun, RH, Hess, CP, Joachim, S, Johnson, K, Kim, W, Liang, MG, Maheshwari, M, McCoy, GN, Metry, DW, Monrad, PA, Pope, E, Powell, J, Shwayder, TA, Siegel, DH, Tollefson, MM, Vadivelu, S, Lew, SM, Frieden, IJ & Drolet, BA 2016, 'PHACE Syndrome: Consensus-Derived Diagnosis and Care Recommendations', Journal of Pediatrics, vol. 178, pp. 24-33.e2.
Garzon MC, Epstein LG, Heyer GL, Frommelt PC, Orbach DB, Baylis AL et al. PHACE Syndrome: Consensus-Derived Diagnosis and Care Recommendations. Journal of Pediatrics. 2016 Nov 1;178:24-33.e2.
Garzon, Maria C. ; Epstein, Leon G. ; Heyer, Geoffrey L. ; Frommelt, Peter C. ; Orbach, Darren B. ; Baylis, Adriane L. ; Blei, Francine ; Burrows, Patricia E. ; Chamlin, Sarah L. ; Chun, Robert H. ; Hess, Christopher P. ; Joachim, Shawna ; Johnson, Katherine ; Kim, Wendy ; Liang, Marilyn G. ; Maheshwari, Mohit ; McCoy, Garrett N. ; Metry, Denise W. ; Monrad, Priya A. ; Pope, Elena ; Powell, Julie ; Shwayder, Tor A. ; Siegel, Dawn H. ; Tollefson, Megha M. ; Vadivelu, Sudhakar ; Lew, Sean M. ; Frieden, Ilona J. ; Drolet, Beth A. / PHACE Syndrome : Consensus-Derived Diagnosis and Care Recommendations. In: Journal of Pediatrics. 2016 ; Vol. 178. pp. 24-33.e2.
title = "PHACE Syndrome: Consensus-Derived Diagnosis and Care Recommendations",
keywords = "aortic coarctation, infantile hemangioma, PHACE, PHACES syndrome",
author = "Garzon, {Maria C.} and Epstein, {Leon G.} and Heyer, {Geoffrey L.} and Frommelt, {Peter C.} and Orbach, {Darren B.} and Baylis, {Adriane L.} and Francine Blei and Burrows, {Patricia E.} and Chamlin, {Sarah L.} and Chun, {Robert H.} and Hess, {Christopher P.} and Shawna Joachim and Katherine Johnson and Wendy Kim and Liang, {Marilyn G.} and Mohit Maheshwari and McCoy, {Garrett N.} and Metry, {Denise W.} and Monrad, {Priya A.} and Elena Pope and Julie Powell and Shwayder, {Tor A.} and Siegel, {Dawn H.} and Tollefson, {Megha M.} and Sudhakar Vadivelu and Lew, {Sean M.} and Frieden, {Ilona J.} and Drolet, {Beth A.}",
year = "2016",
month = "11",
day = "1",
doi = "10.1016/j.jpeds.2016.07.054",
language = "English (US)",
volume = "178",
pages = "24--33.e2",
journal = "Journal of Pediatrics",
issn = "0022-3476",
publisher = "Mosby Inc.",



T1 - PHACE Syndrome

T2 - Consensus-Derived Diagnosis and Care Recommendations

AU - Garzon, Maria C.

AU - Epstein, Leon G.

AU - Heyer, Geoffrey L.

AU - Frommelt, Peter C.

AU - Orbach, Darren B.

AU - Baylis, Adriane L.

AU - Blei, Francine

AU - Burrows, Patricia E.

AU - Chamlin, Sarah L.

AU - Chun, Robert H.

AU - Hess, Christopher P.

AU - Joachim, Shawna

AU - Johnson, Katherine

AU - Kim, Wendy

AU - Liang, Marilyn G.

AU - Maheshwari, Mohit

AU - McCoy, Garrett N.

AU - Metry, Denise W.

AU - Monrad, Priya A.

AU - Pope, Elena

AU - Powell, Julie

AU - Shwayder, Tor A.

AU - Siegel, Dawn H.

AU - Tollefson, Megha M.

AU - Vadivelu, Sudhakar

AU - Lew, Sean M.

AU - Frieden, Ilona J.

AU - Drolet, Beth A.

PY - 2016/11/1

Y1 - 2016/11/1

KW - aortic coarctation

KW - infantile hemangioma


KW - PHACES syndrome

UR -

UR -

U2 - 10.1016/j.jpeds.2016.07.054

DO - 10.1016/j.jpeds.2016.07.054

M3 - Article

C2 - 27659028

AN - SCOPUS:84994691736

VL - 178

SP - 24-33.e2

JO - Journal of Pediatrics

JF - Journal of Pediatrics

SN - 0022-3476

ER -