Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury

Sean M Phelan, Joan Griffin, Wendy L. Hellerstedt, Nina A. Sayer, Agnes C. Jensen, Diana J. Burgess, Michelle Van Ryn

Research output: Contribution to journalArticle

36 Citations (Scopus)

Abstract

Background: Family caregivers of individuals with stigmatized conditions can experience stigma-by-association and discrimination. Moderate-to-severe traumatic brain injury (TBI) may elicit a stigma response if there are visible physical or neurobehavioral effects of the injury. Stigma is a considerable source of stress and may contribute to caregiver strain and stress-related mental health outcomes. We measured the frequency of perceived stigma and discrimination among caregivers of veterans with TBI and examined whether perceived stigma and discrimination are associated with caregiver strain, social isolation, depression, and anxiety. Methods: Seventy caregivers of veterans with TBI completed a mailed survey that assessed perceptions of discrimination toward themselves or their care recipient, stigma associated with caregiving, and whether they felt the need to cover up or provide an explanation for their care recipient's injury. Caregiver strain, social isolation, depression, and anxiety were also assessed via the questionnaire. Multivariate linear regression was used to test the associations between stigma and discrimination measures and outcomes, controlling for potential confounders and other caregiver or care recipient characteristics. Results: Both perceptions of caregiver discrimination and stigma associated with caregiving were significantly associated with caregiver strain, social isolation, depression, and anxiety. Perceived discrimination against the individual with TBI was associated with caregiver strain and social isolation. Conclusions: Our findings suggest that perceived discrimination and stigma experienced by caregivers of individuals with TBI are stressors that may lead to poor caregiver mental health outcomes. In order to promote both caregiver and care recipient health, we suggest that mental health support services consider these important stressors.

Original languageEnglish (US)
Pages (from-to)177-184
Number of pages8
JournalDisability and Health Journal
Volume4
Issue number3
DOIs
StatePublished - Jul 2011
Externally publishedYes

Fingerprint

Veterans
Caregivers
Mental Health
Social Isolation
Anxiety
Depression
Traumatic Brain Injury
Wounds and Injuries
Mental Health Services
Linear Models
Outcome Assessment (Health Care)

Keywords

  • Brain injuries
  • Caregivers
  • Mental health
  • Social isolation
  • Social stigma
  • Veterans

ASJC Scopus subject areas

  • Medicine(all)
  • Public Health, Environmental and Occupational Health

Cite this

Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury. / Phelan, Sean M; Griffin, Joan; Hellerstedt, Wendy L.; Sayer, Nina A.; Jensen, Agnes C.; Burgess, Diana J.; Van Ryn, Michelle.

In: Disability and Health Journal, Vol. 4, No. 3, 07.2011, p. 177-184.

Research output: Contribution to journalArticle

Phelan, Sean M ; Griffin, Joan ; Hellerstedt, Wendy L. ; Sayer, Nina A. ; Jensen, Agnes C. ; Burgess, Diana J. ; Van Ryn, Michelle. / Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury. In: Disability and Health Journal. 2011 ; Vol. 4, No. 3. pp. 177-184.
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