Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer

Neeraj K. Arora, Lila J Rutten, David H. Gustafson, Richard Moser, Robert P. Hawkins

Research output: Contribution to journalArticle

193 Citations (Scopus)

Abstract

We evaluated the helpfulness of informational, emotional, and decision-making support received by women newly diagnosed with breast cancer from their family, friends, and health care providers. Data were collected at two time points via patient surveys: baseline on an average 2 months post-diagnosis and follow-up at 5 months post-baseline. In the period closer to diagnosis, majority of the women received helpful informational support from health care providers (84.0%); helpful emotional support from family (85%), friends (80.4%), and providers (67.1%); and helpful decision-making support from providers (75.2%) and family (71.0%). Emotional support at baseline and emotional and informational support at 5-month follow-up were significantly associated with patients' health-related quality of life and self-efficacy outcomes (p<0.01). Perceived helpfulness of informational, emotional, and decision-making support provided by family, friends, and providers however significantly decreased over time (p<0.001). Cancer patients desire significant amount of support throughout their cancer journey. Our results show that while patients receive a lot of support during the period closer to diagnosis, receipt of helpful support drops significantly within the first year itself. In order to facilitate cancer patients' adjustment to their illness, efforts need to be made to understand and address their support needs throughout the cancer experience.

Original languageEnglish (US)
Pages (from-to)474-486
Number of pages13
JournalPsycho-Oncology
Volume16
Issue number5
DOIs
StatePublished - May 2007
Externally publishedYes

Fingerprint

Family Health
Social Support
Health Personnel
social support
cancer
health care
Breast Neoplasms
Decision Making
decision making
Neoplasms
Social Adjustment
Self Efficacy
self-efficacy
quality of life
illness
Quality of Life
health
experience
time

Keywords

  • Breast cancer
  • Coping
  • Health-related quality of life
  • Longitudinal analysis
  • Self regulation
  • Social support

ASJC Scopus subject areas

  • Oncology
  • Psychology(all)
  • Social Sciences (miscellaneous)

Cite this

Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. / Arora, Neeraj K.; Rutten, Lila J; Gustafson, David H.; Moser, Richard; Hawkins, Robert P.

In: Psycho-Oncology, Vol. 16, No. 5, 05.2007, p. 474-486.

Research output: Contribution to journalArticle

Arora, Neeraj K. ; Rutten, Lila J ; Gustafson, David H. ; Moser, Richard ; Hawkins, Robert P. / Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. In: Psycho-Oncology. 2007 ; Vol. 16, No. 5. pp. 474-486.
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