Perceived consequences of communicating organ donation wishes

An analysis of beliefs about defending one's decision

Research output: Contribution to journalArticle

25 Citations (Scopus)

Abstract

Family communication about organ donation is vital but rare. This research sought to understand a key barrier to communication among young adults: potentially having to defend one's decision to parents. In Study 1, 28 undergraduates considered the advantages and disadvantages of defending a decision about donation to their parents. Fifteen beliefs addressing parental acceptance, knowledge, related discussions (mortality, religion), appearing ignorant, and decision uncertainty, justification, and regret emerged. In Study 2, 209 students evaluated each belief, reported disclosure intentions, and confronted a behavioral option to disclose donation decisions to parents. Students were less likely to disclose if they believed they might change their mind (OR=0.41; 95% CI 0.24-0.71) or think they made the wrong choice (OR=0.33; 95% CI 0.18-0.62). Students perceiving they would strengthen their belief in donation were more likely to disclose (OR=4.49; 95% CI 2.04-9.88). Family communication regarding donation must accommodate uncertainty; optimal approaches may emphasize candid discussion and reconsideration.

Original languageEnglish (US)
Pages (from-to)481-497
Number of pages17
JournalPsychology and Health
Volume21
Issue number4
DOIs
StatePublished - Aug 2006

Fingerprint

Tissue and Organ Procurement
Parents
Students
Uncertainty
Communication
Communication Barriers
Disclosure
Religion
Young Adult
Emotions
Mortality
Research

Keywords

  • Beliefs
  • Decision making
  • Expectancy-value
  • Posthumous organ donation
  • Psychology

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Psychology(all)

Cite this

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title = "Perceived consequences of communicating organ donation wishes: An analysis of beliefs about defending one's decision",
abstract = "Family communication about organ donation is vital but rare. This research sought to understand a key barrier to communication among young adults: potentially having to defend one's decision to parents. In Study 1, 28 undergraduates considered the advantages and disadvantages of defending a decision about donation to their parents. Fifteen beliefs addressing parental acceptance, knowledge, related discussions (mortality, religion), appearing ignorant, and decision uncertainty, justification, and regret emerged. In Study 2, 209 students evaluated each belief, reported disclosure intentions, and confronted a behavioral option to disclose donation decisions to parents. Students were less likely to disclose if they believed they might change their mind (OR=0.41; 95{\%} CI 0.24-0.71) or think they made the wrong choice (OR=0.33; 95{\%} CI 0.18-0.62). Students perceiving they would strengthen their belief in donation were more likely to disclose (OR=4.49; 95{\%} CI 2.04-9.88). Family communication regarding donation must accommodate uncertainty; optimal approaches may emphasize candid discussion and reconsideration.",
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