Passive case-finding for Alzheimer's disease and dementia in two U.S. communities

David S Knopman, Ronald Carl Petersen, Walter A Rocca, Eric B. Larson, Mary Ganguli

Research output: Contribution to journalArticle

31 Citations (Scopus)

Abstract

Passive surveillance for disease is a public health approach that relies on documentation available within existing health records for the region or community being studied. Its two primary advantages over active case-finding are the lower cost of research and the lower burden on the population under study. The effectiveness of passive case-finding depends on the comprehensiveness of the healthcare coverage in a given community and the adequacy of the available medical records. The Rochester Epidemiology Project has permitted dementia case detection for Olmsted County, Minnesota, using a medical records-linkage system. These data were compared with case ascertainment using direct assessment of individuals in an epidemiological study of the same community. At the Group Health Research Institute, investigators compared dementia and Alzheimer's disease cases detected using an electronic medical record database search with those identified by a parallel active case-finding study. In this article, the advantages and disadvantages of passive case-finding were discussed, and the following conclusion was drawn: the purpose of the study being conducted should determine the case-finding approach that is to be used.

Original languageEnglish (US)
Pages (from-to)53-60
Number of pages8
JournalAlzheimer's and Dementia
Volume7
Issue number1
DOIs
StatePublished - Jan 2011

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Alzheimer Disease
Dementia
Medical Record Linkage
Electronic Health Records
Health
Documentation
Medical Records
Epidemiologic Studies
Epidemiology
Public Health
Research Personnel
Databases
Delivery of Health Care
Costs and Cost Analysis
Research
Population

Keywords

  • Alzheimers disease
  • Dementia
  • Electronic medical record
  • Medical records-linkage system
  • Passive surveillance
  • Population-based
  • Prevalence

ASJC Scopus subject areas

  • Health Policy
  • Epidemiology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health
  • Cellular and Molecular Neuroscience
  • Developmental Neuroscience
  • Clinical Neurology

Cite this

Passive case-finding for Alzheimer's disease and dementia in two U.S. communities. / Knopman, David S; Petersen, Ronald Carl; Rocca, Walter A; Larson, Eric B.; Ganguli, Mary.

In: Alzheimer's and Dementia, Vol. 7, No. 1, 01.2011, p. 53-60.

Research output: Contribution to journalArticle

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