Music Therapy Intervention to Reduce Caregiver Distress at End of Life: A Feasibility Study

Kevin J. Whitford; Angela M. Ulrich; Brianna E. Larsen; Christina M. Phelps; Martha J. Siska; Maureen L. Bigelow; Travis J. Dockter; Christina Wood; Monica P. Walton; Amy J. Stelpflug; Maria I. Lapid

doi:10.1016/j.jpainsymman.2023.01.009

Music Therapy Intervention to Reduce Caregiver Distress at End of Life: A Feasibility Study

Kevin J. Whitford, Angela M. Ulrich, Brianna E. Larsen, Christina M. Phelps, Martha J. Siska, Maureen L. Bigelow, Travis J. Dockter, Christina Wood, Monica P. Walton, Amy J. Stelpflug, Maria I. Lapid

Psychiatry and Psychology

Research output: Contribution to journal › Article › peer-review

Abstract

Background: Music therapy (MT) can relieve distressing end-of-life symptoms, but little is known regarding its effect on caregivers who are at risk for emotional distress as their loved ones approach death. Measures: Quality of life (Linear Analogue Self-Assessment), depressive and anxiety symptoms (Patient Health Questionnaire for Depression and Anxiety), and stress (Role Overload Measure) pre-MT, post-MT and at 6-month follow-up, as well as a satisfaction survey post-MT. Intervention: Single MT session for 20-45 minutes Outcomes: 15/20 completed MT intervention, 14 also completed pre-MT and post-MT assessments, and 9 completed assessments at all 3 timepoints. Post-MT satisfaction survey (n=14) showed 100% of caregivers were very satisfied with MT and would recommend to others, and found MT very effective for emotional support (85.7%), stress relief (78.6%), spiritual support (71.4%), general feeling of wellness (71.4%), relaxation (69.2%), and pain relief (33.3%). Conclusions: Research on MT is feasible for caregivers of inpatient hospice patients. Trial Registration: ClinicalTrials.gov Identifier: NCT03322228.

Original language	English (US)
Journal	Journal of pain and symptom management
DOIs	https://doi.org/10.1016/j.jpainsymman.2023.01.009
State	Accepted/In press - 2023

Keywords

caregiver burden
hospice
inpatient
Quality of life

ASJC Scopus subject areas

Nursing(all)
Clinical Neurology
Anesthesiology and Pain Medicine

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10.1016/j.jpainsymman.2023.01.009

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@article{a255cc2376a44994b3a3378b5239d57b,

title = "Music Therapy Intervention to Reduce Caregiver Distress at End of Life: A Feasibility Study",

abstract = "Background: Music therapy (MT) can relieve distressing end-of-life symptoms, but little is known regarding its effect on caregivers who are at risk for emotional distress as their loved ones approach death. Measures: Quality of life (Linear Analogue Self-Assessment), depressive and anxiety symptoms (Patient Health Questionnaire for Depression and Anxiety), and stress (Role Overload Measure) pre-MT, post-MT and at 6-month follow-up, as well as a satisfaction survey post-MT. Intervention: Single MT session for 20-45 minutes Outcomes: 15/20 completed MT intervention, 14 also completed pre-MT and post-MT assessments, and 9 completed assessments at all 3 timepoints. Post-MT satisfaction survey (n=14) showed 100% of caregivers were very satisfied with MT and would recommend to others, and found MT very effective for emotional support (85.7%), stress relief (78.6%), spiritual support (71.4%), general feeling of wellness (71.4%), relaxation (69.2%), and pain relief (33.3%). Conclusions: Research on MT is feasible for caregivers of inpatient hospice patients. Trial Registration: ClinicalTrials.gov Identifier: NCT03322228.",

keywords = "caregiver burden, hospice, inpatient, Quality of life",

author = "Whitford, {Kevin J.} and Ulrich, {Angela M.} and Larsen, {Brianna E.} and Phelps, {Christina M.} and Siska, {Martha J.} and Bigelow, {Maureen L.} and Dockter, {Travis J.} and Christina Wood and Walton, {Monica P.} and Stelpflug, {Amy J.} and Lapid, {Maria I.}",

note = "Funding Information: Dr. Maria Lapid receives NIH funding for research. No authors have any conflict of interest. Funding Information: This work was supported by anonymous benefactors and the Lucy Gonda Foundation. The sponsors had no involvement in the study design; collection, analysis, or interpretation of data; in the writing of the report; nor in the decision to submit the article for publication. Publisher Copyright: {\textcopyright} 2023 American Academy of Hospice and Palliative Medicine",

year = "2023",

doi = "10.1016/j.jpainsymman.2023.01.009",

language = "English (US)",

journal = "Journal of Pain and Symptom Management",

issn = "0885-3924",

publisher = "Elsevier Inc.",

}

TY - JOUR

T1 - Music Therapy Intervention to Reduce Caregiver Distress at End of Life

T2 - A Feasibility Study

AU - Whitford, Kevin J.

AU - Ulrich, Angela M.

AU - Larsen, Brianna E.

AU - Phelps, Christina M.

AU - Siska, Martha J.

AU - Bigelow, Maureen L.

AU - Dockter, Travis J.

AU - Wood, Christina

AU - Walton, Monica P.

AU - Stelpflug, Amy J.

AU - Lapid, Maria I.

N1 - Funding Information: Dr. Maria Lapid receives NIH funding for research. No authors have any conflict of interest. Funding Information: This work was supported by anonymous benefactors and the Lucy Gonda Foundation. The sponsors had no involvement in the study design; collection, analysis, or interpretation of data; in the writing of the report; nor in the decision to submit the article for publication. Publisher Copyright: © 2023 American Academy of Hospice and Palliative Medicine

PY - 2023

Y1 - 2023

N2 - Background: Music therapy (MT) can relieve distressing end-of-life symptoms, but little is known regarding its effect on caregivers who are at risk for emotional distress as their loved ones approach death. Measures: Quality of life (Linear Analogue Self-Assessment), depressive and anxiety symptoms (Patient Health Questionnaire for Depression and Anxiety), and stress (Role Overload Measure) pre-MT, post-MT and at 6-month follow-up, as well as a satisfaction survey post-MT. Intervention: Single MT session for 20-45 minutes Outcomes: 15/20 completed MT intervention, 14 also completed pre-MT and post-MT assessments, and 9 completed assessments at all 3 timepoints. Post-MT satisfaction survey (n=14) showed 100% of caregivers were very satisfied with MT and would recommend to others, and found MT very effective for emotional support (85.7%), stress relief (78.6%), spiritual support (71.4%), general feeling of wellness (71.4%), relaxation (69.2%), and pain relief (33.3%). Conclusions: Research on MT is feasible for caregivers of inpatient hospice patients. Trial Registration: ClinicalTrials.gov Identifier: NCT03322228.

AB - Background: Music therapy (MT) can relieve distressing end-of-life symptoms, but little is known regarding its effect on caregivers who are at risk for emotional distress as their loved ones approach death. Measures: Quality of life (Linear Analogue Self-Assessment), depressive and anxiety symptoms (Patient Health Questionnaire for Depression and Anxiety), and stress (Role Overload Measure) pre-MT, post-MT and at 6-month follow-up, as well as a satisfaction survey post-MT. Intervention: Single MT session for 20-45 minutes Outcomes: 15/20 completed MT intervention, 14 also completed pre-MT and post-MT assessments, and 9 completed assessments at all 3 timepoints. Post-MT satisfaction survey (n=14) showed 100% of caregivers were very satisfied with MT and would recommend to others, and found MT very effective for emotional support (85.7%), stress relief (78.6%), spiritual support (71.4%), general feeling of wellness (71.4%), relaxation (69.2%), and pain relief (33.3%). Conclusions: Research on MT is feasible for caregivers of inpatient hospice patients. Trial Registration: ClinicalTrials.gov Identifier: NCT03322228.

KW - caregiver burden

KW - hospice

KW - inpatient

KW - Quality of life

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U2 - 10.1016/j.jpainsymman.2023.01.009

DO - 10.1016/j.jpainsymman.2023.01.009

M3 - Article

C2 - 36682675

AN - SCOPUS:85148352819

SN - 0885-3924

JO - Journal of Pain and Symptom Management

JF - Journal of Pain and Symptom Management

ER -

Music Therapy Intervention to Reduce Caregiver Distress at End of Life: A Feasibility Study

Abstract

Keywords

ASJC Scopus subject areas

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