Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings.

Jeff A Sloan, Shannon Scott-Findlay, Anne Nemecek, Paul Blood, Cheryl Trylinski, Heather Whittaker, Samy El Sayed, Jennifer Clinch, Kong Khoo

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.

Original languageEnglish (US)
Pages (from-to)224-232
Number of pages9
JournalCanadian oncology nursing journal = Revue canadienne de nursing oncologique
Volume14
Issue number4
StatePublished - 2004
Externally publishedYes

Fingerprint

Delivery of Health Care
Manitoba
Neoplasms
Survival
Information Storage and Retrieval
Research
Population
Data Accuracy

Cite this

Mapping the journey of cancer patients through the health care system. Part 2 : Methodological approaches and basic findings. / Sloan, Jeff A; Scott-Findlay, Shannon; Nemecek, Anne; Blood, Paul; Trylinski, Cheryl; Whittaker, Heather; El Sayed, Samy; Clinch, Jennifer; Khoo, Kong.

In: Canadian oncology nursing journal = Revue canadienne de nursing oncologique, Vol. 14, No. 4, 2004, p. 224-232.

Research output: Contribution to journalArticle

Sloan, JA, Scott-Findlay, S, Nemecek, A, Blood, P, Trylinski, C, Whittaker, H, El Sayed, S, Clinch, J & Khoo, K 2004, 'Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings.', Canadian oncology nursing journal = Revue canadienne de nursing oncologique, vol. 14, no. 4, pp. 224-232.
Sloan, Jeff A ; Scott-Findlay, Shannon ; Nemecek, Anne ; Blood, Paul ; Trylinski, Cheryl ; Whittaker, Heather ; El Sayed, Samy ; Clinch, Jennifer ; Khoo, Kong. / Mapping the journey of cancer patients through the health care system. Part 2 : Methodological approaches and basic findings. In: Canadian oncology nursing journal = Revue canadienne de nursing oncologique. 2004 ; Vol. 14, No. 4. pp. 224-232.
@article{241fd43533ba47b7bc7705d9d8d5a8d9,
title = "Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings.",
abstract = "This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.",
author = "Sloan, {Jeff A} and Shannon Scott-Findlay and Anne Nemecek and Paul Blood and Cheryl Trylinski and Heather Whittaker and {El Sayed}, Samy and Jennifer Clinch and Kong Khoo",
year = "2004",
language = "English (US)",
volume = "14",
pages = "224--232",
journal = "Canadian oncology nursing journal = Revue canadienne de nursing oncologique",
issn = "1181-912X",
publisher = "Pappin Communications",
number = "4",

}

TY - JOUR

T1 - Mapping the journey of cancer patients through the health care system. Part 2

T2 - Methodological approaches and basic findings.

AU - Sloan, Jeff A

AU - Scott-Findlay, Shannon

AU - Nemecek, Anne

AU - Blood, Paul

AU - Trylinski, Cheryl

AU - Whittaker, Heather

AU - El Sayed, Samy

AU - Clinch, Jennifer

AU - Khoo, Kong

PY - 2004

Y1 - 2004

N2 - This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.

AB - This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.

UR - http://www.scopus.com/inward/record.url?scp=13844315796&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=13844315796&partnerID=8YFLogxK

M3 - Article

C2 - 2005029715

AN - SCOPUS:13844315796

VL - 14

SP - 224

EP - 232

JO - Canadian oncology nursing journal = Revue canadienne de nursing oncologique

JF - Canadian oncology nursing journal = Revue canadienne de nursing oncologique

SN - 1181-912X

IS - 4

ER -