Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings.

Jeff A. Sloan, Shannon Scott-Findlay, Anne Nemecek, Paul Blood, Cheryl Trylinski, Heather Whittaker, Samy El Sayed, Jennifer Clinch, Kong Khoo

Research output: Contribution to journalArticle

3 Scopus citations

Abstract

This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.

Original languageEnglish (US)
Pages (from-to)224-232
Number of pages9
JournalCanadian oncology nursing journal = Revue canadienne de nursing oncologique
Volume14
Issue number4
StatePublished - Jan 1 2004

ASJC Scopus subject areas

  • Medicine(all)

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