Long-term psychosocial outcomes after nondirected donation: A single-center experience

Cheryl Jacobs, Danielle M. Berglund, Jennifer F. Wiseman, Catherine Garvey, Dawn B. Larson, Margaret Voges, Carmen Radecki Breitkopf, Hassan N. Ibrahim, Arthur J. Matas

Research output: Contribution to journalArticle

Abstract

Short-term studies have demonstrated that nondirected donors (NDDs) have psychosocial outcomes that are similar to donors who donate directly, but long-term studies have not been done. NDDs at our center were surveyed regarding motivation; support during donation; stress related to donation; regret; financial resources used for donation; preferences about communication with the recipient; and cost reimbursement. Of 100 NDDs who donated at our center in the last 20 years, 95 remain in contact with us, and 77 responded to our survey (mean ± standard deviation [SD] 6.7 ± 4 years postdonation). The most common motivation for donation was the desire to help another (99%). Many NDDs received support from family, friends, and employers. NDDs voiced stress about the possibility of recipient kidney rejection, physical consequences to themselves, and financial burden. Only one donor expressed regret. Almost half wanted some recipient information at donation; 61% preferred routine recipient status updates; 56% believed meeting the recipient should occur at any mutually agreeable time; and 55% endorsed reimbursement for expenses. Stressors for NDDs are analogous to those of directed donors; NDDs prefer having some information about the recipient and prefer to be given a choice regarding the timing for communication with the recipient. NDDs supported donation being financially neutral.

Original languageEnglish (US)
JournalAmerican Journal of Transplantation
DOIs
StateAccepted/In press - Jan 1 2018

Fingerprint

Tissue Donors
Motivation
Emotions
Communication
Kidney
Costs and Cost Analysis

Keywords

  • clinical research/practice
  • donor evaluation
  • donor follow-up
  • donors and donation
  • education
  • health services and outcomes research
  • paired exchange
  • social sciences

ASJC Scopus subject areas

  • Immunology and Allergy
  • Transplantation
  • Pharmacology (medical)

Cite this

Jacobs, C., Berglund, D. M., Wiseman, J. F., Garvey, C., Larson, D. B., Voges, M., ... Matas, A. J. (Accepted/In press). Long-term psychosocial outcomes after nondirected donation: A single-center experience. American Journal of Transplantation. https://doi.org/10.1111/ajt.15179

Long-term psychosocial outcomes after nondirected donation : A single-center experience. / Jacobs, Cheryl; Berglund, Danielle M.; Wiseman, Jennifer F.; Garvey, Catherine; Larson, Dawn B.; Voges, Margaret; Radecki Breitkopf, Carmen; Ibrahim, Hassan N.; Matas, Arthur J.

In: American Journal of Transplantation, 01.01.2018.

Research output: Contribution to journalArticle

Jacobs, Cheryl ; Berglund, Danielle M. ; Wiseman, Jennifer F. ; Garvey, Catherine ; Larson, Dawn B. ; Voges, Margaret ; Radecki Breitkopf, Carmen ; Ibrahim, Hassan N. ; Matas, Arthur J. / Long-term psychosocial outcomes after nondirected donation : A single-center experience. In: American Journal of Transplantation. 2018.
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