Interventions for End of Life Decision Making for Patients with Limited English Proficiency

Amelia Barwise, Joyce Balls-Berry, Jalal Soleimani, Bibek Karki, Brandon Barrett, Katerina Castillo, Samantha Kreps, Hilary Kunkel, Beatriz Vega, Patricia Erwin, Nataly Espinoza Suarez, Michael E. Wilson

Research output: Contribution to journalArticle

Abstract

Patients with limited English proficiency (LEP) experience disparities in end-of-life decision making and advance care planning. Our objective was to conduct a systematic review to assess the literature about interventions addressing these issues. Our search strategy was built around end-of-life (EOL), LEP, ACP, and goals of care. The databases included Ovid MEDLINE(R), and Epub Ahead of Print, In-Process & Other Non-Indexed Citations and Daily from 1946 to November 9, 2018, Ovid EMBASE. Eight studies from the US and Australia were included (seven studies in Spanish and one study in Greek and Italian). Interventions used trained personnel, video images, web-based programs, and written materials. Interventions were associated with increased advance directive completion and decreased preferences for some life-prolonging treatments. Interventions were deemed to be feasible and acceptable. Few interventions exist to improve end-of-life care for patients with LEP. Data are limited regarding intervention effectiveness.

Original languageEnglish (US)
Pages (from-to)860-872
Number of pages13
JournalJournal of Immigrant and Minority Health
Volume22
Issue number4
DOIs
StatePublished - Aug 1 2020

Keywords

  • Advance care planning
  • Advance directive
  • Disparities
  • End-of-life care
  • End-of-life decision making
  • Interventions
  • LEP
  • Limited english proficiency
  • Systematic review

ASJC Scopus subject areas

  • Epidemiology
  • Public Health, Environmental and Occupational Health

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  • Cite this

    Barwise, A., Balls-Berry, J., Soleimani, J., Karki, B., Barrett, B., Castillo, K., Kreps, S., Kunkel, H., Vega, B., Erwin, P., Espinoza Suarez, N., & Wilson, M. E. (2020). Interventions for End of Life Decision Making for Patients with Limited English Proficiency. Journal of Immigrant and Minority Health, 22(4), 860-872. https://doi.org/10.1007/s10903-019-00947-w