Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations

Claire F. Snyder, Neil K. Aaronson, Ali K. Choucair, Thomas E. Elliott, Joanne Greenhalgh, Michele Y. Halyard, Rachel Hess, Deborah M. Miller, Bryce B. Reeve, Maria Santana

Research output: Contribution to journalArticle

304 Citations (Scopus)

Abstract

Purpose: While clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide. Methods: Using the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option. Results: Implementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which question-naire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice. Conclusions: Integrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.

Original languageEnglish (US)
Pages (from-to)1305-1314
Number of pages10
JournalQuality of Life Research
Volume21
Issue number8
DOIs
StatePublished - Oct 2012

Fingerprint

Patient Outcome Assessment
Quality of Life
Patient-Centered Care
Patient Reported Outcome Measures
Research

Keywords

  • Clinical practice
  • Guidelines
  • Patient-reported outcomes

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Medicine(all)

Cite this

Snyder, C. F., Aaronson, N. K., Choucair, A. K., Elliott, T. E., Greenhalgh, J., Halyard, M. Y., ... Santana, M. (2012). Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations. Quality of Life Research, 21(8), 1305-1314. https://doi.org/10.1007/s11136-011-0054-x

Implementing patient-reported outcomes assessment in clinical practice : A review of the options and considerations. / Snyder, Claire F.; Aaronson, Neil K.; Choucair, Ali K.; Elliott, Thomas E.; Greenhalgh, Joanne; Halyard, Michele Y.; Hess, Rachel; Miller, Deborah M.; Reeve, Bryce B.; Santana, Maria.

In: Quality of Life Research, Vol. 21, No. 8, 10.2012, p. 1305-1314.

Research output: Contribution to journalArticle

Snyder, CF, Aaronson, NK, Choucair, AK, Elliott, TE, Greenhalgh, J, Halyard, MY, Hess, R, Miller, DM, Reeve, BB & Santana, M 2012, 'Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations', Quality of Life Research, vol. 21, no. 8, pp. 1305-1314. https://doi.org/10.1007/s11136-011-0054-x
Snyder, Claire F. ; Aaronson, Neil K. ; Choucair, Ali K. ; Elliott, Thomas E. ; Greenhalgh, Joanne ; Halyard, Michele Y. ; Hess, Rachel ; Miller, Deborah M. ; Reeve, Bryce B. ; Santana, Maria. / Implementing patient-reported outcomes assessment in clinical practice : A review of the options and considerations. In: Quality of Life Research. 2012 ; Vol. 21, No. 8. pp. 1305-1314.
@article{c956cdeba6864eadbed7bf7718da00b0,
title = "Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations",
abstract = "Purpose: While clinical care is frequently directed at making patients {"}feel better,{"} patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide. Methods: Using the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option. Results: Implementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which question-naire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice. Conclusions: Integrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.",
keywords = "Clinical practice, Guidelines, Patient-reported outcomes",
author = "Snyder, {Claire F.} and Aaronson, {Neil K.} and Choucair, {Ali K.} and Elliott, {Thomas E.} and Joanne Greenhalgh and Halyard, {Michele Y.} and Rachel Hess and Miller, {Deborah M.} and Reeve, {Bryce B.} and Maria Santana",
year = "2012",
month = "10",
doi = "10.1007/s11136-011-0054-x",
language = "English (US)",
volume = "21",
pages = "1305--1314",
journal = "Quality of Life Research",
issn = "0962-9343",
publisher = "Springer Netherlands",
number = "8",

}

TY - JOUR

T1 - Implementing patient-reported outcomes assessment in clinical practice

T2 - A review of the options and considerations

AU - Snyder, Claire F.

AU - Aaronson, Neil K.

AU - Choucair, Ali K.

AU - Elliott, Thomas E.

AU - Greenhalgh, Joanne

AU - Halyard, Michele Y.

AU - Hess, Rachel

AU - Miller, Deborah M.

AU - Reeve, Bryce B.

AU - Santana, Maria

PY - 2012/10

Y1 - 2012/10

N2 - Purpose: While clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide. Methods: Using the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option. Results: Implementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which question-naire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice. Conclusions: Integrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.

AB - Purpose: While clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide. Methods: Using the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option. Results: Implementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which question-naire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice. Conclusions: Integrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.

KW - Clinical practice

KW - Guidelines

KW - Patient-reported outcomes

UR - http://www.scopus.com/inward/record.url?scp=84867068685&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84867068685&partnerID=8YFLogxK

U2 - 10.1007/s11136-011-0054-x

DO - 10.1007/s11136-011-0054-x

M3 - Article

C2 - 22048932

AN - SCOPUS:84867068685

VL - 21

SP - 1305

EP - 1314

JO - Quality of Life Research

JF - Quality of Life Research

SN - 0962-9343

IS - 8

ER -