Impact of childhood psoriasis on parents of affected children

Megha M Tollefson, Dawn M. Finnie, Jennifer J. Schoch, David T Eton

Research output: Contribution to journalArticle

14 Scopus citations

Abstract

Background: Childhood diseases, such as atopic dermatitis, have a negative impact on quality of life (QoL) of parents. How pediatric psoriasis affects a parent's QoL is unknown. Objective: To explore the impact of childhood psoriasis on the lives of the parents. Methods: Semistructured interviews were conducted with 31 parents of children with psoriasis. Narrative data were analyzed and a conceptual framework of the effects of childhood psoriasis on parents was developed. Results: All parents reported that their child's psoriasis caused a substantial, negative impact on their own QoL. A conceptual framework showed a negative impact on health and self-care, emotional well-being, family and social function, personal well-being, and life pursuits. Emotional well-being was the most affected domain. Limitations: It was not possible to correlate psoriasis severity with parental QoL. Conclusion: Childhood psoriasis alters the QoL of parents in multiple ways. Information from this study can be used to develop a QoL instrument to explore treatment and support strategies for families affected by pediatric psoriasis.

Original languageEnglish (US)
JournalJournal of the American Academy of Dermatology
DOIs
StateAccepted/In press - 2016

Keywords

  • Emotional well-being
  • Family function
  • Health and self-care
  • Parent
  • Personal well-being
  • Psoriasis
  • Quality of life
  • Social function

ASJC Scopus subject areas

  • Dermatology

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