Harnessing next-generation informatics for personalizing medicine: A report from AMIA's 2014 health policy invitational meeting

Laura K. Wiley, Peter Tarczy-Hornoch, Joshua C. Denny, Robert R. Freimuth, Casey L. Overby, Nigam Shah, Ross D. Martin, Indra Neil Sarkar

Research output: Contribution to journalArticlepeer-review

5 Scopus citations

Abstract

The American Medical Informatics Association convened the 2014 Health Policy Invitational Meeting to develop recommendations for updates to current policies and to establish an informatics research agenda for personalizing medicine. In particular, the meeting focused on discussing informatics challenges related to personalizing care through the integration of genomic or other high-volume biomolecular data with data from clinical systems to make health care more efficient and effective. This report summarizes the findings (n=6) and recommendations (n=15) from the policy meeting, which were clustered into 3 broad areas: (1) policies governing data access for research and personalization of care; (2) policy and research needs for evolving data interpretation and knowledge representation; and (3) policy and research needs to ensure data integrity and preservation. The meeting outcome underscored the need to address a number of important policy and technical considerations in order to realize the potential of personalized or precision medicine in actual clinical contexts.

Original languageEnglish (US)
Pages (from-to)413-419
Number of pages7
JournalJournal of the American Medical Informatics Association
Volume23
Issue number2
DOIs
StatePublished - Mar 1 2016

Keywords

  • Health policy
  • Learning health care system
  • Medical informatics
  • Precision medicine
  • Translational bioinformatics

ASJC Scopus subject areas

  • Health Informatics

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