Grappling with groups: Protecting collective interests in biomedical research

Richard R. Sharp, Morris W. Foster

Research output: Contribution to journalArticlepeer-review

19 Scopus citations

Abstract

Strategies for protecting historically disadvantaged groups have been extensively debated in the context of genetic variation research, making this a useful starting point in examining the protection of social groups from harm resulting from biomedical research. We analyze research practices developed in response to concerns about the involvement of indigenous communities in studies of genetic variation and consider their potential application in other contexts. We highlight several conceptual ambiguities and practical challenges associated with the protection of group interests and argue that protectionist strategies developed in the context of genetic research will not be easily adapted to other types of research in which social groups are placed at risk. We suggest that it is this set of conceptual and practical issues that philosophers, ethicists, and others should focus on in their efforts to protect identifiable social groups from harm resulting from biomedical research.

Original languageEnglish (US)
Pages (from-to)321-337
Number of pages17
JournalJournal of Medicine and Philosophy
Volume32
Issue number4
DOIs
StatePublished - Jul 1 2007

Keywords

  • Biomedical research
  • Culture
  • Ethics
  • Ethnicity
  • Genetics
  • Group harm
  • Race

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Philosophy

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