Evaluation of the intermittent exotropia questionnaire using rasch analysis

David A. Leske; Jonathan M. Holmes; B. Michele Melia; Aaron Miller; Jorie Jackson; Donny Suh; Susan Hayes; Stephen Glaser; Monica Pacheco; Laura Graham; Evelyn Paysse; Kimberly Yen; Mohamed Hussein; Paul Steinkuller; David Coats; Lingkun Kong; Sean Donahue; David Morrison; Lori Ann Kehler; Robert Estes; Lisa Fraine; David Petersen; J. McMurtrey; Nicholas Sala; Jeanine Romeo; Earl Crouch; Gaylord Ventura; Brian Mohney; Tomohiko Yamada; Sarah Hatt; Rebecca Nielsen; Laura Liebermann; Rosanne Superstein; Caroline Belanger; Nicole Fallaha; Maryse Thibeault; Benjamin Ticho; Alexander Khammar; Megan Allen; Deborah Clausius; Darren Hoover; Pamela Huston; Laura Enyedi; David Wallace; Tammy Yanovitch; Sarah Jones; David Silbert; Noelle Matta; Richard Weaver; Eric Hein; Lori Cooke; Scott Lambert; Phoebe Lenhart; Amy Hutchinson; Judy Brower; Robert Rutstein; Wendy Marsh-Tootle; Katherine Weise; Marcela Frazier; Ross Roegner; Susan Cotter; Angela Chen; Carmen Barnhardt; Kristine Huang; Paula Handford; Reena Patel; Catherine Heyman; Raymond Chu; Lernik Mesropian; Susan Parker; Susanna Tamkins; Todd Goldblum; Kenneth Adams; Angela Alfaro; Christie Morse; Maynard Wheeler; Melanie Christian; C. Gail Summers; Jill Anderson; Erick Bothun; Inge De Becker; Sarah Downes; Ann Holleschau; Nausheen Khuddus; Tammy Price; Bahram Rahmani; Hawke Yoon; Yana Kiesau; Aaliyah Hamidullah; Joan Roberts; Heather Klem; Brian Arthur; Lesley Macsween; William Astle; Kenneth Romanchuk; Emi Sanders; Robert Duckman; Marilyn Vricella; Sara Meeder; Patricia Davis; Indre Rudaitis; Mae Peterseim; Ronald Teed; Carol Bradham; Mary Louise Collins; Allison Jensen; Maureen Flanagan; Daniel Karr; Allison Summers; Ann Stout; Paula Rauch; Yi Pang; Anesu Mvududu; Michael Bartiss; Tennille McGaw; Faruk Ogre; Beth Colon; Mitchell Scheiman; Karen Pollack; Jean Ramsey; Stephen Christiansen; Elise Harb; Vanessa Vazquez; Ruth E. Manny; Karen D. Fern; Catherine McDaniel; Heather Anderson; Joan Do; Adriana Grigorian; Rebecca Dent; Ilana Friedman; Evelyn Koestenblatt; G. Robert La Roche; Stephen Van Iderstine; Michael X. Repka; Hee Jung Park; Xiaonong Liu; Alex Christoff; David Tien; Samantha Garner; Richard London; Jayne Silver; Don Lyon; Tawna Roberts; Vivian Wong; Kristy Dunlap; Matthew Gearinger; Peter Macdowell; Mary O'Hara; Nandini Gandhi; Elias Traboulsi; Paul Rychwalski; Susan Crowe; Edward Cheeseman; Michelle Bass; Jeffery Colburn; Eileen Dittman; Susannah Longmuir; Wanda Ottar Pfeifer; Daniel Neely; Michele Whitaker; Marjean Kulp; Andrew Toole; Tamara Oechslin; Freda Dallas; Nancy Stevens; Yasmin Bradfield; Barbara Soderling; Mitchell Strominger; Shelley Klein; Erin Herlihy; Jennifer Brady; Gregory Ostrow; Laura Kirkeby; Tamiesha Frempong; Dipali Dave; Stacy Pineles; Marianne Esguerra; Sergul Erzurum; Diana McOwen; Brian Forbes; Gil Binenbaum; Karen Karp; Tara Cronin; Cheryl Capobianco; Robert Peters; Jan Hilbrands; Daniel Laby; Heidi Martin; Jacqueline Rodena; Annette Bade; Airaj Fasiuddin; Blair Spencer; Justin Smith; Mei Mellott; Troy Kieser.

doi:10.1001/jamaophthalmol.2014.5622

Evaluation of the intermittent exotropia questionnaire using rasch analysis

David A. Leske, Jonathan M. Holmes, B. Michele Melia, Aaron Miller, Jorie Jackson, Donny Suh, Susan Hayes, Stephen Glaser, Monica Pacheco, Laura Graham, Evelyn Paysse, Kimberly Yen, Mohamed Hussein, Paul Steinkuller, David Coats, Lingkun Kong, Sean Donahue, David Morrison, Lori Ann Kehler, Robert EstesLisa Fraine, David Petersen, J. McMurtrey, Nicholas Sala, Jeanine Romeo, Earl Crouch, Gaylord Ventura, Brian Mohney, Tomohiko Yamada, Sarah Hatt, Rebecca Nielsen, Laura Liebermann, Rosanne Superstein, Caroline Belanger, Nicole Fallaha, Maryse Thibeault, Benjamin Ticho, Alexander Khammar, Megan Allen, Deborah Clausius, Darren Hoover, Pamela Huston, Laura Enyedi, David Wallace, Tammy Yanovitch, Sarah Jones, David Silbert, Noelle Matta, Richard Weaver, Eric Hein, Lori Cooke, Scott Lambert, Phoebe Lenhart, Amy Hutchinson, Judy Brower, Robert Rutstein, Wendy Marsh-Tootle, Katherine Weise, Marcela Frazier, Ross Roegner, Susan Cotter, Angela Chen, Carmen Barnhardt, Kristine Huang, Paula Handford, Reena Patel, Catherine Heyman, Raymond Chu, Lernik Mesropian, Susan Parker, Susanna Tamkins, Todd Goldblum, Kenneth Adams, Angela Alfaro, Christie Morse, Maynard Wheeler, Melanie Christian, C. Gail Summers, Jill Anderson, Erick Bothun, Inge De Becker, Sarah Downes, Ann Holleschau, Nausheen Khuddus, Tammy Price, Bahram Rahmani, Hawke Yoon, Yana Kiesau, Aaliyah Hamidullah, Joan Roberts, Heather Klem, Brian Arthur, Lesley Macsween, William Astle, Kenneth Romanchuk, Emi Sanders, Robert Duckman, Marilyn Vricella, Sara Meeder, Patricia Davis, Indre Rudaitis, Mae Peterseim, Ronald Teed, Carol Bradham, Mary Louise Collins, Allison Jensen, Maureen Flanagan, Daniel Karr, Allison Summers, Ann Stout, Paula Rauch, Yi Pang, Anesu Mvududu, Michael Bartiss, Tennille McGaw, Faruk Ogre, Beth Colon, Mitchell Scheiman, Karen Pollack, Jean Ramsey, Stephen Christiansen, Elise Harb, Vanessa Vazquez, Ruth E. Manny, Karen D. Fern, Catherine McDaniel, Heather Anderson, Joan Do, Adriana Grigorian, Rebecca Dent, Ilana Friedman, Evelyn Koestenblatt, G. Robert La Roche, Stephen Van Iderstine, Michael X. Repka, Hee Jung Park, Xiaonong Liu, Alex Christoff, David Tien, Samantha Garner, Richard London, Jayne Silver, Don Lyon, Tawna Roberts, Vivian Wong, Kristy Dunlap, Matthew Gearinger, Peter Macdowell, Mary O'Hara, Nandini Gandhi, Elias Traboulsi, Paul Rychwalski, Susan Crowe, Edward Cheeseman, Michelle Bass, Jeffery Colburn, Eileen Dittman, Susannah Longmuir, Wanda Ottar Pfeifer, Daniel Neely, Michele Whitaker, Marjean Kulp, Andrew Toole, Tamara Oechslin, Freda Dallas, Nancy Stevens, Yasmin Bradfield, Barbara Soderling, Mitchell Strominger, Shelley Klein, Erin Herlihy, Jennifer Brady, Gregory Ostrow, Laura Kirkeby, Tamiesha Frempong, Dipali Dave, Stacy Pineles, Marianne Esguerra, Sergul Erzurum, Diana McOwen, Brian Forbes, Gil Binenbaum, Karen Karp, Tara Cronin, Cheryl Capobianco, Robert Peters, Jan Hilbrands, Daniel Laby, Heidi Martin, Jacqueline Rodena, Annette Bade, Airaj Fasiuddin, Blair Spencer, Justin Smith, Mei Mellott, Troy Kieser.

Ophthalmology

Research output: Contribution to journal › Article › peer-review

17 Scopus citations

Abstract

IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.

Original language	English (US)
Pages (from-to)	461-465
Number of pages	5
Journal	JAMA Ophthalmology
Volume	133
Issue number	4
DOIs	https://doi.org/10.1001/jamaophthalmol.2014.5622
State	Published - Apr 1 2015

ASJC Scopus subject areas

Ophthalmology

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10.1001/jamaophthalmol.2014.5622

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Leske, D. A., Holmes, J. M., Michele Melia, B., Miller, A., Jackson, J., Suh, D., Hayes, S., Glaser, S., Pacheco, M., Graham, L., Paysse, E., Yen, K., Hussein, M., Steinkuller, P., Coats, D., Kong, L., Donahue, S., Morrison, D., Kehler, L. A., ... Kieser., T. (2015). Evaluation of the intermittent exotropia questionnaire using rasch analysis. JAMA Ophthalmology, 133(4), 461-465. https://doi.org/10.1001/jamaophthalmol.2014.5622

Leske, DA, Holmes, JM, Michele Melia, B, Miller, A, Jackson, J, Suh, D, Hayes, S, Glaser, S, Pacheco, M, Graham, L, Paysse, E, Yen, K, Hussein, M, Steinkuller, P, Coats, D, Kong, L, Donahue, S, Morrison, D, Kehler, LA, Estes, R, Fraine, L, Petersen, D, McMurtrey, J, Sala, N, Romeo, J, Crouch, E, Ventura, G, Mohney, B, Yamada, T, Hatt, S, Nielsen, R, Liebermann, L, Superstein, R, Belanger, C, Fallaha, N, Thibeault, M, Ticho, B, Khammar, A, Allen, M, Clausius, D, Hoover, D, Huston, P, Enyedi, L, Wallace, D, Yanovitch, T, Jones, S, Silbert, D, Matta, N, Weaver, R, Hein, E, Cooke, L, Lambert, S, Lenhart, P, Hutchinson, A, Brower, J, Rutstein, R, Marsh-Tootle, W, Weise, K, Frazier, M, Roegner, R, Cotter, S, Chen, A, Barnhardt, C, Huang, K, Handford, P, Patel, R, Heyman, C, Chu, R, Mesropian, L, Parker, S, Tamkins, S, Goldblum, T, Adams, K, Alfaro, A, Morse, C, Wheeler, M, Christian, M, Gail Summers, C, Anderson, J, Bothun, E, De Becker, I, Downes, S, Holleschau, A, Khuddus, N, Price, T, Rahmani, B, Yoon, H, Kiesau, Y, Hamidullah, A, Roberts, J, Klem, H, Arthur, B, Macsween, L, Astle, W, Romanchuk, K, Sanders, E, Duckman, R, Vricella, M, Meeder, S, Davis, P, Rudaitis, I, Peterseim, M, Teed, R, Bradham, C, Collins, ML, Jensen, A, Flanagan, M, Karr, D, Summers, A, Stout, A, Rauch, P, Pang, Y, Mvududu, A, Bartiss, M, McGaw, T, Ogre, F, Colon, B, Scheiman, M, Pollack, K, Ramsey, J, Christiansen, S, Harb, E, Vazquez, V, Manny, RE, Fern, KD, McDaniel, C, Anderson, H, Do, J, Grigorian, A, Dent, R, Friedman, I, Koestenblatt, E, Robert La Roche, G, Van Iderstine, S, Repka, MX, Park, HJ, Liu, X, Christoff, A, Tien, D, Garner, S, London, R, Silver, J, Lyon, D, Roberts, T, Wong, V, Dunlap, K, Gearinger, M, Macdowell, P, O'Hara, M, Gandhi, N, Traboulsi, E, Rychwalski, P, Crowe, S, Cheeseman, E, Bass, M, Colburn, J, Dittman, E, Longmuir, S, Pfeifer, WO, Neely, D, Whitaker, M, Kulp, M, Toole, A, Oechslin, T, Dallas, F, Stevens, N, Bradfield, Y, Soderling, B, Strominger, M, Klein, S, Herlihy, E, Brady, J, Ostrow, G, Kirkeby, L, Frempong, T, Dave, D, Pineles, S, Esguerra, M, Erzurum, S, McOwen, D, Forbes, B, Binenbaum, G, Karp, K, Cronin, T, Capobianco, C, Peters, R, Hilbrands, J, Laby, D, Martin, H, Rodena, J, Bade, A, Fasiuddin, A, Spencer, B, Smith, J, Mellott, M & Kieser., T 2015, 'Evaluation of the intermittent exotropia questionnaire using rasch analysis', JAMA Ophthalmology, vol. 133, no. 4, pp. 461-465. https://doi.org/10.1001/jamaophthalmol.2014.5622

@article{f32403f94fdd47daaad745cbec6d2726,

title = "Evaluation of the intermittent exotropia questionnaire using rasch analysis",

abstract = "IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.",

author = "Leske, {David A.} and Holmes, {Jonathan M.} and {Michele Melia}, B. and Aaron Miller and Jorie Jackson and Donny Suh and Susan Hayes and Stephen Glaser and Monica Pacheco and Laura Graham and Evelyn Paysse and Kimberly Yen and Mohamed Hussein and Paul Steinkuller and David Coats and Lingkun Kong and Sean Donahue and David Morrison and Kehler, {Lori Ann} and Robert Estes and Lisa Fraine and David Petersen and J. McMurtrey and Nicholas Sala and Jeanine Romeo and Earl Crouch and Gaylord Ventura and Brian Mohney and Tomohiko Yamada and Sarah Hatt and Rebecca Nielsen and Laura Liebermann and Rosanne Superstein and Caroline Belanger and Nicole Fallaha and Maryse Thibeault and Benjamin Ticho and Alexander Khammar and Megan Allen and Deborah Clausius and Darren Hoover and Pamela Huston and Laura Enyedi and David Wallace and Tammy Yanovitch and Sarah Jones and David Silbert and Noelle Matta and Richard Weaver and Eric Hein and Lori Cooke and Scott Lambert and Phoebe Lenhart and Amy Hutchinson and Judy Brower and Robert Rutstein and Wendy Marsh-Tootle and Katherine Weise and Marcela Frazier and Ross Roegner and Susan Cotter and Angela Chen and Carmen Barnhardt and Kristine Huang and Paula Handford and Reena Patel and Catherine Heyman and Raymond Chu and Lernik Mesropian and Susan Parker and Susanna Tamkins and Todd Goldblum and Kenneth Adams and Angela Alfaro and Christie Morse and Maynard Wheeler and Melanie Christian and {Gail Summers}, C. and Jill Anderson and Erick Bothun and {De Becker}, Inge and Sarah Downes and Ann Holleschau and Nausheen Khuddus and Tammy Price and Bahram Rahmani and Hawke Yoon and Yana Kiesau and Aaliyah Hamidullah and Joan Roberts and Heather Klem and Brian Arthur and Lesley Macsween and William Astle and Kenneth Romanchuk and Emi Sanders and Robert Duckman and Marilyn Vricella and Sara Meeder and Patricia Davis and Indre Rudaitis and Mae Peterseim and Ronald Teed and Carol Bradham and Collins, {Mary Louise} and Allison Jensen and Maureen Flanagan and Daniel Karr and Allison Summers and Ann Stout and Paula Rauch and Yi Pang and Anesu Mvududu and Michael Bartiss and Tennille McGaw and Faruk Ogre and Beth Colon and Mitchell Scheiman and Karen Pollack and Jean Ramsey and Stephen Christiansen and Elise Harb and Vanessa Vazquez and Manny, {Ruth E.} and Fern, {Karen D.} and Catherine McDaniel and Heather Anderson and Joan Do and Adriana Grigorian and Rebecca Dent and Ilana Friedman and Evelyn Koestenblatt and {Robert La Roche}, G. and {Van Iderstine}, Stephen and Repka, {Michael X.} and Park, {Hee Jung} and Xiaonong Liu and Alex Christoff and David Tien and Samantha Garner and Richard London and Jayne Silver and Don Lyon and Tawna Roberts and Vivian Wong and Kristy Dunlap and Matthew Gearinger and Peter Macdowell and Mary O'Hara and Nandini Gandhi and Elias Traboulsi and Paul Rychwalski and Susan Crowe and Edward Cheeseman and Michelle Bass and Jeffery Colburn and Eileen Dittman and Susannah Longmuir and Pfeifer, {Wanda Ottar} and Daniel Neely and Michele Whitaker and Marjean Kulp and Andrew Toole and Tamara Oechslin and Freda Dallas and Nancy Stevens and Yasmin Bradfield and Barbara Soderling and Mitchell Strominger and Shelley Klein and Erin Herlihy and Jennifer Brady and Gregory Ostrow and Laura Kirkeby and Tamiesha Frempong and Dipali Dave and Stacy Pineles and Marianne Esguerra and Sergul Erzurum and Diana McOwen and Brian Forbes and Gil Binenbaum and Karen Karp and Tara Cronin and Cheryl Capobianco and Robert Peters and Jan Hilbrands and Daniel Laby and Heidi Martin and Jacqueline Rodena and Annette Bade and Airaj Fasiuddin and Blair Spencer and Justin Smith and Mei Mellott and Troy Kieser.",

year = "2015",

month = apr,

day = "1",

doi = "10.1001/jamaophthalmol.2014.5622",

language = "English (US)",

volume = "133",

pages = "461--465",

journal = "JAMA Ophthalmology",

issn = "2168-6165",

publisher = "American Medical Association",

number = "4",

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TY - JOUR

T1 - Evaluation of the intermittent exotropia questionnaire using rasch analysis

AU - Leske, David A.

AU - Holmes, Jonathan M.

AU - Michele Melia, B.

AU - Miller, Aaron

AU - Jackson, Jorie

AU - Suh, Donny

AU - Hayes, Susan

AU - Glaser, Stephen

AU - Pacheco, Monica

AU - Graham, Laura

AU - Paysse, Evelyn

AU - Yen, Kimberly

AU - Hussein, Mohamed

AU - Steinkuller, Paul

AU - Coats, David

AU - Kong, Lingkun

AU - Donahue, Sean

AU - Morrison, David

AU - Kehler, Lori Ann

AU - Estes, Robert

AU - Fraine, Lisa

AU - Petersen, David

AU - McMurtrey, J.

AU - Sala, Nicholas

AU - Romeo, Jeanine

AU - Crouch, Earl

AU - Ventura, Gaylord

AU - Mohney, Brian

AU - Yamada, Tomohiko

AU - Hatt, Sarah

AU - Nielsen, Rebecca

AU - Liebermann, Laura

AU - Superstein, Rosanne

AU - Belanger, Caroline

AU - Fallaha, Nicole

AU - Thibeault, Maryse

AU - Ticho, Benjamin

AU - Khammar, Alexander

AU - Allen, Megan

AU - Clausius, Deborah

AU - Hoover, Darren

AU - Huston, Pamela

AU - Enyedi, Laura

AU - Wallace, David

AU - Yanovitch, Tammy

AU - Jones, Sarah

AU - Silbert, David

AU - Matta, Noelle

AU - Weaver, Richard

AU - Hein, Eric

AU - Cooke, Lori

AU - Lambert, Scott

AU - Lenhart, Phoebe

AU - Hutchinson, Amy

AU - Brower, Judy

AU - Rutstein, Robert

AU - Marsh-Tootle, Wendy

AU - Weise, Katherine

AU - Frazier, Marcela

AU - Roegner, Ross

AU - Cotter, Susan

AU - Chen, Angela

AU - Barnhardt, Carmen

AU - Huang, Kristine

AU - Handford, Paula

AU - Patel, Reena

AU - Heyman, Catherine

AU - Chu, Raymond

AU - Mesropian, Lernik

AU - Parker, Susan

AU - Tamkins, Susanna

AU - Goldblum, Todd

AU - Adams, Kenneth

AU - Alfaro, Angela

AU - Morse, Christie

AU - Wheeler, Maynard

AU - Christian, Melanie

AU - Gail Summers, C.

AU - Anderson, Jill

AU - Bothun, Erick

AU - De Becker, Inge

AU - Downes, Sarah

AU - Holleschau, Ann

AU - Khuddus, Nausheen

AU - Price, Tammy

AU - Rahmani, Bahram

AU - Yoon, Hawke

AU - Kiesau, Yana

AU - Hamidullah, Aaliyah

AU - Roberts, Joan

AU - Klem, Heather

AU - Arthur, Brian

AU - Macsween, Lesley

AU - Astle, William

AU - Romanchuk, Kenneth

AU - Sanders, Emi

AU - Duckman, Robert

AU - Vricella, Marilyn

AU - Meeder, Sara

AU - Davis, Patricia

AU - Rudaitis, Indre

AU - Peterseim, Mae

AU - Teed, Ronald

AU - Bradham, Carol

AU - Collins, Mary Louise

AU - Jensen, Allison

AU - Flanagan, Maureen

AU - Karr, Daniel

AU - Summers, Allison

AU - Stout, Ann

AU - Rauch, Paula

AU - Pang, Yi

AU - Mvududu, Anesu

AU - Bartiss, Michael

AU - McGaw, Tennille

AU - Ogre, Faruk

AU - Colon, Beth

AU - Scheiman, Mitchell

AU - Pollack, Karen

AU - Ramsey, Jean

AU - Christiansen, Stephen

AU - Harb, Elise

AU - Vazquez, Vanessa

AU - Manny, Ruth E.

AU - Fern, Karen D.

AU - McDaniel, Catherine

AU - Anderson, Heather

AU - Do, Joan

AU - Grigorian, Adriana

AU - Dent, Rebecca

AU - Friedman, Ilana

AU - Koestenblatt, Evelyn

AU - Robert La Roche, G.

AU - Van Iderstine, Stephen

AU - Repka, Michael X.

AU - Park, Hee Jung

AU - Liu, Xiaonong

AU - Christoff, Alex

AU - Tien, David

AU - Garner, Samantha

AU - London, Richard

AU - Silver, Jayne

AU - Lyon, Don

AU - Roberts, Tawna

AU - Wong, Vivian

AU - Dunlap, Kristy

AU - Gearinger, Matthew

AU - Macdowell, Peter

AU - O'Hara, Mary

AU - Gandhi, Nandini

AU - Traboulsi, Elias

AU - Rychwalski, Paul

AU - Crowe, Susan

AU - Cheeseman, Edward

AU - Bass, Michelle

AU - Colburn, Jeffery

AU - Dittman, Eileen

AU - Longmuir, Susannah

AU - Pfeifer, Wanda Ottar

AU - Neely, Daniel

AU - Whitaker, Michele

AU - Kulp, Marjean

AU - Toole, Andrew

AU - Oechslin, Tamara

AU - Dallas, Freda

AU - Stevens, Nancy

AU - Bradfield, Yasmin

AU - Soderling, Barbara

AU - Strominger, Mitchell

AU - Klein, Shelley

AU - Herlihy, Erin

AU - Brady, Jennifer

AU - Ostrow, Gregory

AU - Kirkeby, Laura

AU - Frempong, Tamiesha

AU - Dave, Dipali

AU - Pineles, Stacy

AU - Esguerra, Marianne

AU - Erzurum, Sergul

AU - McOwen, Diana

AU - Forbes, Brian

AU - Binenbaum, Gil

AU - Karp, Karen

AU - Cronin, Tara

AU - Capobianco, Cheryl

AU - Peters, Robert

AU - Hilbrands, Jan

AU - Laby, Daniel

AU - Martin, Heidi

AU - Rodena, Jacqueline

AU - Bade, Annette

AU - Fasiuddin, Airaj

AU - Spencer, Blair

AU - Smith, Justin

AU - Mellott, Mei

AU - Kieser., Troy

PY - 2015/4/1

Y1 - 2015/4/1

N2 - IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.

AB - IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.

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U2 - 10.1001/jamaophthalmol.2014.5622

DO - 10.1001/jamaophthalmol.2014.5622

M3 - Article

C2 - 25634146

AN - SCOPUS:84928248681

SN - 2168-6165

VL - 133

SP - 461

EP - 465

JO - JAMA Ophthalmology

JF - JAMA Ophthalmology

IS - 4

ER -

Evaluation of the intermittent exotropia questionnaire using rasch analysis

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