TY - JOUR
T1 - Ethical, legal, and social implications of incorporating genomic information into electronic health records
AU - Hazin, Ribhi
AU - Brothers, Kyle B.
AU - Malin, Bradley A.
AU - Koenig, Barbara A.
AU - Sanderson, Saskia C.
AU - Rothstein, Mark A.
AU - Williams, Marc S.
AU - Clayton, Ellen W.
AU - Kullo, Iftikhar J.
PY - 2013/10
Y1 - 2013/10
N2 - The inclusion of genomic data in the electronic health record raises important ethical, legal, and social issues. In this article, we highlight these challenges and discuss potential solutions. We provide a brief background on the current state of electronic health records in the context of genomic medicine, discuss the importance of equitable access to genome-enabled electronic health records, and consider the potential use of electronic health records for improving genomic literacy in patients and providers. We highlight the importance of privacy, access, and security, and of determining which genomic information is included in the electronic health record. Finally, we discuss the challenges of reporting incidental findings, storing and reinterpreting genomic data, and nondocumentation and duty to warn family members at potential genetic risk.
AB - The inclusion of genomic data in the electronic health record raises important ethical, legal, and social issues. In this article, we highlight these challenges and discuss potential solutions. We provide a brief background on the current state of electronic health records in the context of genomic medicine, discuss the importance of equitable access to genome-enabled electronic health records, and consider the potential use of electronic health records for improving genomic literacy in patients and providers. We highlight the importance of privacy, access, and security, and of determining which genomic information is included in the electronic health record. Finally, we discuss the challenges of reporting incidental findings, storing and reinterpreting genomic data, and nondocumentation and duty to warn family members at potential genetic risk.
KW - clinical decision support, electronic health records
KW - ethical, legal, and social implications
KW - genomics
KW - personalized medicine
UR - http://www.scopus.com/inward/record.url?scp=84885127320&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84885127320&partnerID=8YFLogxK
U2 - 10.1038/gim.2013.117
DO - 10.1038/gim.2013.117
M3 - Review article
C2 - 24030434
AN - SCOPUS:84885127320
SN - 1098-3600
VL - 15
SP - 810
EP - 816
JO - Genetics in Medicine
JF - Genetics in Medicine
IS - 10
ER -