Development and Testing of the CAHPS Cancer Care Survey

Christian T. Evensen, Kathleen J. Yost, San Keller, Neeraj K. Arora, Elizabeth Frentzel, Tamika Cowans, Steven A. Garfinkel

Research output: Contribution to journalArticle

Abstract

PURPOSE: The Consumer Assessment of Healthcare Providers and Systems (CAHPS) Cancer Care Survey is a systematic assessment of health care experiences of patients with cancer. It supports comparisons among all cancer treatment settings and modalities. METHODS: Formative research included 16 focus groups with patients receiving treatment and family members; advice from a panel of oncology and quality improvement experts; and interviews with stakeholders representing oncology associations, accredited cancer centers, and community oncology practices. We conducted cognitive tests of the instrument and field tests at six cancer centers and four community oncology practices, after which the survey was finalized and obtained the CAHPS trademark. RESULTS: The survey includes 56 questions that form six core composite measures (Getting Timely Care; Supporting Patient Self-Management; Available to Provide Care and Information; Provider Communication; Care Coordination; and Courteous Office Staff); two single-item measures of family participation in care and interpreter services; and two global ratings of cancer care and the treatment team. Sixteen additional items form three supplemental composite measures: Shared Decision-Making, Keeping Patients Informed, and Access to Care. CONCLUSION: Mail-only, mail-telephone mixed-mode, and Web-mail mixed-mode data collection methods are recommended. The questionnaires and instructions for use are free and available in English and Spanish on the CAHPS Website (www.ahrq.gov/cahps).

Original languageEnglish (US)
Pages (from-to)e969-e978
JournalJournal of oncology practice
Volume15
Issue number11
DOIs
StatePublished - Nov 1 2019

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Health Personnel
Delivery of Health Care
Postal Service
Neoplasms
Patents
Self Care
Quality Improvement
Focus Groups
Telephone
Surveys and Questionnaires
Decision Making
Therapeutics
Communication
Interviews
Research

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)
  • Health Policy

Cite this

Evensen, C. T., Yost, K. J., Keller, S., Arora, N. K., Frentzel, E., Cowans, T., & Garfinkel, S. A. (2019). Development and Testing of the CAHPS Cancer Care Survey. Journal of oncology practice, 15(11), e969-e978. https://doi.org/10.1200/JOP.19.00039

Development and Testing of the CAHPS Cancer Care Survey. / Evensen, Christian T.; Yost, Kathleen J.; Keller, San; Arora, Neeraj K.; Frentzel, Elizabeth; Cowans, Tamika; Garfinkel, Steven A.

In: Journal of oncology practice, Vol. 15, No. 11, 01.11.2019, p. e969-e978.

Research output: Contribution to journalArticle

Evensen, CT, Yost, KJ, Keller, S, Arora, NK, Frentzel, E, Cowans, T & Garfinkel, SA 2019, 'Development and Testing of the CAHPS Cancer Care Survey', Journal of oncology practice, vol. 15, no. 11, pp. e969-e978. https://doi.org/10.1200/JOP.19.00039
Evensen CT, Yost KJ, Keller S, Arora NK, Frentzel E, Cowans T et al. Development and Testing of the CAHPS Cancer Care Survey. Journal of oncology practice. 2019 Nov 1;15(11):e969-e978. https://doi.org/10.1200/JOP.19.00039
Evensen, Christian T. ; Yost, Kathleen J. ; Keller, San ; Arora, Neeraj K. ; Frentzel, Elizabeth ; Cowans, Tamika ; Garfinkel, Steven A. / Development and Testing of the CAHPS Cancer Care Survey. In: Journal of oncology practice. 2019 ; Vol. 15, No. 11. pp. e969-e978.
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