Development and implementation of an electronic Clinical Dementia Rating and Financial Capacity Instrument-Short Form

Taylor Howell; Shilpa Gummadi; Chau Bui; Jessica Santhakumar; Kristen Knight; Erik D. Roberson; Daniel Marson; Carol Chambless; Adam Gersteneker; Roy Martin; Richard Kennedy; Yue Zhang; John C. Morris; Krista L. Moulder; Connie Mayo; Maria Carroll; Yan Li; Ronald C. Petersen; Nikki H. Stricker; Rachel L. Nosheny; Scott Mackin; Michael W. Weiner

doi:10.1002/dad2.12331

Development and implementation of an electronic Clinical Dementia Rating and Financial Capacity Instrument-Short Form

Taylor Howell, Shilpa Gummadi, Chau Bui, Jessica Santhakumar, Kristen Knight, Erik D. Roberson, Daniel Marson, Carol Chambless, Adam Gersteneker, Roy Martin, Richard Kennedy, Yue Zhang, John C. Morris, Krista L. Moulder, Connie Mayo, Maria Carroll, Yan Li, Ronald C. Petersen, Nikki H. Stricker, Rachel L. NoshenyScott Mackin, Michael W. Weiner

Research output: Contribution to journal › Article › peer-review

Abstract

Introduction: To address the need for remote assessments of cognitive decline and dementia, we developed and administered electronic versions of the Clinical Dementia Rating (CDR®) and the Financial Capacity Instrument-Short Form (FCI-SF) (F-CAP^®), called the eCDR and eFCI, respectively. Methods: The CDR and FCI-SF were adapted for remote, unsupervised, online use based on item response analysis of the standard instruments. Participants completed the eCDR and eFCI first in clinic, and then at home within 2 weeks. Results: Of the 243 enrolled participants, 179 (73%) cognitively unimpaired (CU), 50 (21%) with mild cognitive impairment (MCI) or dementia, and 14 (6%) with an unknown diagnosis, 84% and 85% of them successfully completed the eCDR and eFCI, respectively, at home. Discussion: These results show initial feasibility in developing and administering online instruments to remotely assess and monitor cognitive decline along the CU to MCI/very mild dementia continuum. Validation is an important next step.

Original language	English (US)
Article number	e12331
Journal	Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring
Volume	14
Issue number	1
DOIs	https://doi.org/10.1002/dad2.12331
State	Published - 2022

Keywords

Alzheimer's disease
Brain Health Registry
aging research
internet
remote online instruments

ASJC Scopus subject areas

Clinical Neurology
Psychiatry and Mental health

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10.1002/dad2.12331

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Howell, T., Gummadi, S., Bui, C., Santhakumar, J., Knight, K., Roberson, E. D., Marson, D., Chambless, C., Gersteneker, A., Martin, R., Kennedy, R., Zhang, Y., Morris, J. C., Moulder, K. L., Mayo, C., Carroll, M., Li, Y., Petersen, R. C., Stricker, N. H., ... Weiner, M. W. (2022). Development and implementation of an electronic Clinical Dementia Rating and Financial Capacity Instrument-Short Form. Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring, 14(1), Article e12331. https://doi.org/10.1002/dad2.12331

Howell, T, Gummadi, S, Bui, C, Santhakumar, J, Knight, K, Roberson, ED, Marson, D, Chambless, C, Gersteneker, A, Martin, R, Kennedy, R, Zhang, Y, Morris, JC, Moulder, KL, Mayo, C, Carroll, M, Li, Y, Petersen, RC , Stricker, NH, Nosheny, RL, Mackin, S & Weiner, MW 2022, 'Development and implementation of an electronic Clinical Dementia Rating and Financial Capacity Instrument-Short Form', Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring, vol. 14, no. 1, e12331. https://doi.org/10.1002/dad2.12331

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abstract = "Introduction: To address the need for remote assessments of cognitive decline and dementia, we developed and administered electronic versions of the Clinical Dementia Rating (CDR{\textregistered}) and the Financial Capacity Instrument-Short Form (FCI-SF) (F-CAP{\textregistered}), called the eCDR and eFCI, respectively. Methods: The CDR and FCI-SF were adapted for remote, unsupervised, online use based on item response analysis of the standard instruments. Participants completed the eCDR and eFCI first in clinic, and then at home within 2 weeks. Results: Of the 243 enrolled participants, 179 (73%) cognitively unimpaired (CU), 50 (21%) with mild cognitive impairment (MCI) or dementia, and 14 (6%) with an unknown diagnosis, 84% and 85% of them successfully completed the eCDR and eFCI, respectively, at home. Discussion: These results show initial feasibility in developing and administering online instruments to remotely assess and monitor cognitive decline along the CU to MCI/very mild dementia continuum. Validation is an important next step.",

keywords = "Alzheimer's disease, Brain Health Registry, aging research, internet, remote online instruments",

author = "Taylor Howell and Shilpa Gummadi and Chau Bui and Jessica Santhakumar and Kristen Knight and Roberson, {Erik D.} and Daniel Marson and Carol Chambless and Adam Gersteneker and Roy Martin and Richard Kennedy and Yue Zhang and Morris, {John C.} and Moulder, {Krista L.} and Connie Mayo and Maria Carroll and Yan Li and Petersen, {Ronald C.} and Stricker, {Nikki H.} and Nosheny, {Rachel L.} and Scott Mackin and Weiner, {Michael W.}",

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year = "2022",

doi = "10.1002/dad2.12331",

language = "English (US)",

volume = "14",

journal = "Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring",

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AU - Howell, Taylor

AU - Gummadi, Shilpa

AU - Bui, Chau

AU - Santhakumar, Jessica

AU - Knight, Kristen

AU - Roberson, Erik D.

AU - Marson, Daniel

AU - Chambless, Carol

AU - Gersteneker, Adam

AU - Martin, Roy

AU - Kennedy, Richard

AU - Zhang, Yue

AU - Morris, John C.

AU - Moulder, Krista L.

AU - Mayo, Connie

AU - Carroll, Maria

AU - Li, Yan

AU - Petersen, Ronald C.

AU - Stricker, Nikki H.

AU - Nosheny, Rachel L.

AU - Mackin, Scott

AU - Weiner, Michael W.

PY - 2022

Y1 - 2022

N2 - Introduction: To address the need for remote assessments of cognitive decline and dementia, we developed and administered electronic versions of the Clinical Dementia Rating (CDR®) and the Financial Capacity Instrument-Short Form (FCI-SF) (F-CAP®), called the eCDR and eFCI, respectively. Methods: The CDR and FCI-SF were adapted for remote, unsupervised, online use based on item response analysis of the standard instruments. Participants completed the eCDR and eFCI first in clinic, and then at home within 2 weeks. Results: Of the 243 enrolled participants, 179 (73%) cognitively unimpaired (CU), 50 (21%) with mild cognitive impairment (MCI) or dementia, and 14 (6%) with an unknown diagnosis, 84% and 85% of them successfully completed the eCDR and eFCI, respectively, at home. Discussion: These results show initial feasibility in developing and administering online instruments to remotely assess and monitor cognitive decline along the CU to MCI/very mild dementia continuum. Validation is an important next step.

AB - Introduction: To address the need for remote assessments of cognitive decline and dementia, we developed and administered electronic versions of the Clinical Dementia Rating (CDR®) and the Financial Capacity Instrument-Short Form (FCI-SF) (F-CAP®), called the eCDR and eFCI, respectively. Methods: The CDR and FCI-SF were adapted for remote, unsupervised, online use based on item response analysis of the standard instruments. Participants completed the eCDR and eFCI first in clinic, and then at home within 2 weeks. Results: Of the 243 enrolled participants, 179 (73%) cognitively unimpaired (CU), 50 (21%) with mild cognitive impairment (MCI) or dementia, and 14 (6%) with an unknown diagnosis, 84% and 85% of them successfully completed the eCDR and eFCI, respectively, at home. Discussion: These results show initial feasibility in developing and administering online instruments to remotely assess and monitor cognitive decline along the CU to MCI/very mild dementia continuum. Validation is an important next step.

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Development and implementation of an electronic Clinical Dementia Rating and Financial Capacity Instrument-Short Form

Abstract

Keywords

ASJC Scopus subject areas

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