Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy

Marcela P. Aliste, Adela Grando, Anita Murcko, Hiral Soni, Michael Todd, Madhumita Mukundan, Michael Saks, Caroline Horrow, Richard R Sharp, Christy Dye, Darwyn Chern, Mary Jo Whitfield, Mark Callesen

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

We piloted a Spanish and English survey on data privacy. Thirty-one Latino behavioral health patients completed the survey in person with a preference for paper (78%) over electronic questionnaire. Dialect variations across Latino countries and the lack of tools to assess reading level in Spanish affected comprehension. Our experience will help others address similar tasks more effectively and encourage inclusion of Latino populations in future research.

Original languageEnglish (US)
Title of host publicationMEDINFO 2019
Subtitle of host publicationHealth and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics
EditorsBrigitte Seroussi, Lucila Ohno-Machado, Lucila Ohno-Machado, Brigitte Seroussi
PublisherIOS Press
Pages1891-1892
Number of pages2
ISBN (Electronic)9781643680026
DOIs
StatePublished - Aug 21 2019
Event17th World Congress on Medical and Health Informatics, MEDINFO 2019 - Lyon, France
Duration: Aug 25 2019Aug 30 2019

Publication series

NameStudies in Health Technology and Informatics
Volume264
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference17th World Congress on Medical and Health Informatics, MEDINFO 2019
CountryFrance
CityLyon
Period8/25/198/30/19

Keywords

  • Behavior
  • Health Surveys
  • Latinos
  • Privacy

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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  • Cite this

    Aliste, M. P., Grando, A., Murcko, A., Soni, H., Todd, M., Mukundan, M., Saks, M., Horrow, C., Sharp, R. R., Dye, C., Chern, D., Whitfield, M. J., & Callesen, M. (2019). Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy. In B. Seroussi, L. Ohno-Machado, L. Ohno-Machado, & B. Seroussi (Eds.), MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics (pp. 1891-1892). (Studies in Health Technology and Informatics; Vol. 264). IOS Press. https://doi.org/10.3233/SHTI190699