Data representation in healthcare: A design for a freely-available openly-developed international reference terminology for healthcare

Peter L. Elkin, Steven H. Brown, Michael J. Lincoln, Mark Pittelkow, Brent A. Bauer, Dietlind Wahner-Roedler, Rhonda Thomas, Larry Bergstrom

Research output: Chapter in Book/Report/Conference proceedingConference contribution

1 Scopus citations

Abstract

The importance of data representation in healthcare has been of concern for centuries. In the last fifty years there has been an increasing awareness of the need for formal representations of terminological systems. We propose that terminological system development should be consensus driven and the product of iterative open refinement in order to practically serve the needs of the healthcare community. The system of development and maintenance of such a system must involve recruitment of the best and the brightest in the medical community to take responsibility for insuring the accuracy and completeness of such an effort. We suggest a method for algorithmically building a starting point for such a reference terminology. Further we suggest a distributed authoring environment that would allow domain experts to contribute regardless of their location or language. Open intellectual contribution is the necessary ingredient for a consensus based international health reference terminology.

Original languageEnglish (US)
Title of host publicationThe New Navigators
Subtitle of host publicationFrom Professional to Patients - Proceedings of MIE 2003
PublisherIOS Press
Pages427-432
Number of pages6
ISBN (Print)1586033476, 9781586033477
DOIs
StatePublished - Jan 1 2003
Event18th International Congress of the European Federation for Medical Informatics, MIE 2003 - St. Malo, France
Duration: May 4 2003May 7 2003

Publication series

NameStudies in Health Technology and Informatics
Volume95
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Other

Other18th International Congress of the European Federation for Medical Informatics, MIE 2003
CountryFrance
CitySt. Malo
Period5/4/035/7/03

Keywords

  • Controlled Health Terminologies
  • Ontologies
  • Reference Terminologies

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Fingerprint Dive into the research topics of 'Data representation in healthcare: A design for a freely-available openly-developed international reference terminology for healthcare'. Together they form a unique fingerprint.

  • Cite this

    Elkin, P. L., Brown, S. H., Lincoln, M. J., Pittelkow, M., Bauer, B. A., Wahner-Roedler, D., Thomas, R., & Bergstrom, L. (2003). Data representation in healthcare: A design for a freely-available openly-developed international reference terminology for healthcare. In The New Navigators: From Professional to Patients - Proceedings of MIE 2003 (pp. 427-432). (Studies in Health Technology and Informatics; Vol. 95). IOS Press. https://doi.org/10.3233/978-1-60750-939-4-427