Data collection of patient outcomes: One institution's experience

Thomas J. Whitaker, Charles S. Mayo, Daniel J. Ma, Michael Haddock, Robert C. Miller, Kimberly S. Corbin, Michelle Neben-Wittich, James L. Leenstra, Nadia N Laack, Mirek Fatyga, Steven E. Schild, Carlos E. Vargas, Katherine S. Tzou, Austin R. Hadley, Steven J. Buskirk, Robert L. Foote

Research output: Contribution to journalArticle

Abstract

Patient- and provider-reported outcomes are recognized as important in evaluating quality of care, guiding health care policy, comparative effectiveness research, and decision-making in radiation oncology. Combining patient and provider outcome data with a detailed description of disease and therapy is the basis for these analyses. We report on the combination of technical solutions and clinical process changes at our institution that were used in the collection and dissemination of this data. This initiative has resulted in the collection of treatment data for 23 541 patients, 20 465 patients with provider-based adverse event records, and patient-reported outcome surveys submitted by 5622 patients. All of the data is made accessible using a self-service web-based tool.

Original languageEnglish (US)
Pages (from-to)i19-i24
JournalJournal of Radiation Research
Volume59
DOIs
StatePublished - Mar 1 2018

Fingerprint

Comparative Effectiveness Research
Radiation Oncology
Quality of Health Care
Health Policy
web services
Decision Making
decision making
Delivery of Health Care
health
therapy
Therapeutics
radiation
Patient Reported Outcome Measures
Surveys and Questionnaires

Keywords

  • analytics
  • big data
  • informatics
  • patient outcomes
  • randomized controlled trials

ASJC Scopus subject areas

  • Radiation
  • Radiology Nuclear Medicine and imaging
  • Health, Toxicology and Mutagenesis

Cite this

Whitaker, T. J., Mayo, C. S., Ma, D. J., Haddock, M., Miller, R. C., Corbin, K. S., ... Foote, R. L. (2018). Data collection of patient outcomes: One institution's experience. Journal of Radiation Research, 59, i19-i24. https://doi.org/10.1093/jrr/rry013

Data collection of patient outcomes : One institution's experience. / Whitaker, Thomas J.; Mayo, Charles S.; Ma, Daniel J.; Haddock, Michael; Miller, Robert C.; Corbin, Kimberly S.; Neben-Wittich, Michelle; Leenstra, James L.; Laack, Nadia N; Fatyga, Mirek; Schild, Steven E.; Vargas, Carlos E.; Tzou, Katherine S.; Hadley, Austin R.; Buskirk, Steven J.; Foote, Robert L.

In: Journal of Radiation Research, Vol. 59, 01.03.2018, p. i19-i24.

Research output: Contribution to journalArticle

Whitaker, TJ, Mayo, CS, Ma, DJ, Haddock, M, Miller, RC, Corbin, KS, Neben-Wittich, M, Leenstra, JL, Laack, NN, Fatyga, M, Schild, SE, Vargas, CE, Tzou, KS, Hadley, AR, Buskirk, SJ & Foote, RL 2018, 'Data collection of patient outcomes: One institution's experience', Journal of Radiation Research, vol. 59, pp. i19-i24. https://doi.org/10.1093/jrr/rry013
Whitaker, Thomas J. ; Mayo, Charles S. ; Ma, Daniel J. ; Haddock, Michael ; Miller, Robert C. ; Corbin, Kimberly S. ; Neben-Wittich, Michelle ; Leenstra, James L. ; Laack, Nadia N ; Fatyga, Mirek ; Schild, Steven E. ; Vargas, Carlos E. ; Tzou, Katherine S. ; Hadley, Austin R. ; Buskirk, Steven J. ; Foote, Robert L. / Data collection of patient outcomes : One institution's experience. In: Journal of Radiation Research. 2018 ; Vol. 59. pp. i19-i24.
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