Data collection of patient outcomes: One institution's experience

Thomas J. Whitaker, Charles S. Mayo, Daniel J. Ma, Michael G. Haddock, Robert C. Miller, Kimberly S. Corbin, Michelle Neben-Wittich, James L. Leenstra, Nadia N. Laack, Mirek Fatyga, Steven E. Schild, Carlos E. Vargas, Katherine S. Tzou, Austin R. Hadley, Steven J. Buskirk, Robert L. Foote

Research output: Contribution to journalArticle

Abstract

Patient- and provider-reported outcomes are recognized as important in evaluating quality of care, guiding health care policy, comparative effectiveness research, and decision-making in radiation oncology. Combining patient and provider outcome data with a detailed description of disease and therapy is the basis for these analyses. We report on the combination of technical solutions and clinical process changes at our institution that were used in the collection and dissemination of this data. This initiative has resulted in the collection of treatment data for 23 541 patients, 20 465 patients with provider-based adverse event records, and patient-reported outcome surveys submitted by 5622 patients. All of the data is made accessible using a self-service web-based tool.

Original languageEnglish (US)
Pages (from-to)i19-i24
JournalJournal of Radiation Research
Volume59
DOIs
StatePublished - Mar 1 2018

Keywords

  • analytics
  • big data
  • informatics
  • patient outcomes
  • randomized controlled trials

ASJC Scopus subject areas

  • Radiation
  • Radiology Nuclear Medicine and imaging
  • Health, Toxicology and Mutagenesis

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  • Cite this

    Whitaker, T. J., Mayo, C. S., Ma, D. J., Haddock, M. G., Miller, R. C., Corbin, K. S., Neben-Wittich, M., Leenstra, J. L., Laack, N. N., Fatyga, M., Schild, S. E., Vargas, C. E., Tzou, K. S., Hadley, A. R., Buskirk, S. J., & Foote, R. L. (2018). Data collection of patient outcomes: One institution's experience. Journal of Radiation Research, 59, i19-i24. https://doi.org/10.1093/jrr/rry013