Current Approaches to Cancer Genetic Counseling Services for Spanish-Speaking Patients

Bianca Augusto; Monica L. Kasting; Fergus J. Couch; Noralane M. Lindor; Susan T. Vadaparampil

doi:10.1007/s10903-018-0772-z

Current Approaches to Cancer Genetic Counseling Services for Spanish-Speaking Patients

Bianca Augusto, Monica L. Kasting, Fergus J. Couch, Noralane M. Lindor, Susan T. Vadaparampil

Research output: Contribution to journal › Article › peer-review

2 Scopus citations

Abstract

Barriers to genetic counseling services (GCS) utilization for Spanish-speaking patients (SSP) may include language barriers and limited availability of bilingual genetic counselors (GCs). The sample included GCs who: (1) practice cancer genetic counseling, (2) report a cancer practice setting, and (3) have a US mailing address. We assessed: (1) number of Spanish-speaking GCs, (2) estimated proportion of Hispanic patients, and (3) approaches used to counsel SSP. Of respondents (n = 229), 10% (n = 23) spoke Spanish. A higher proportion of GCs practicing in states with ≥ 25% Hispanics reported speaking Spanish compared to those in states with lower Hispanic populations (p = 0.02). While there was a significantly higher percentage of Spanish-speaking GCs in states with larger Hispanic populations, the absolute number was low and unlikely to meet the needs of patients. There is need to increase availability of GCS for SSPs and to understand the impact of services on patient health outcomes.

Original language	English (US)
Pages (from-to)	434-437
Number of pages	4
Journal	Journal of Immigrant and Minority Health
Volume	21
Issue number	2
DOIs	https://doi.org/10.1007/s10903-018-0772-z
State	Published - Apr 15 2019

Keywords

BRCA
Breast cancer
Genetic counseling
Hereditary cancer
Spanish-speaking patients

ASJC Scopus subject areas

Epidemiology
Public Health, Environmental and Occupational Health

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title = "Current Approaches to Cancer Genetic Counseling Services for Spanish-Speaking Patients",

abstract = "Barriers to genetic counseling services (GCS) utilization for Spanish-speaking patients (SSP) may include language barriers and limited availability of bilingual genetic counselors (GCs). The sample included GCs who: (1) practice cancer genetic counseling, (2) report a cancer practice setting, and (3) have a US mailing address. We assessed: (1) number of Spanish-speaking GCs, (2) estimated proportion of Hispanic patients, and (3) approaches used to counsel SSP. Of respondents (n = 229), 10% (n = 23) spoke Spanish. A higher proportion of GCs practicing in states with ≥ 25% Hispanics reported speaking Spanish compared to those in states with lower Hispanic populations (p = 0.02). While there was a significantly higher percentage of Spanish-speaking GCs in states with larger Hispanic populations, the absolute number was low and unlikely to meet the needs of patients. There is need to increase availability of GCS for SSPs and to understand the impact of services on patient health outcomes.",

keywords = "BRCA, Breast cancer, Genetic counseling, Hereditary cancer, Spanish-speaking patients",

author = "Bianca Augusto and Kasting, {Monica L.} and Couch, {Fergus J.} and Lindor, {Noralane M.} and Vadaparampil, {Susan T.}",

note = "Funding Information: Acknowledgements This work was supported by the Breast Cancer Spore CA 116201 and in part by the Survey Methods Core Facility at the H. Lee Moffitt Cancer Center & Research Institute; a National Cancer Institute designated Comprehensive Cancer Center (P30-CA76292).",

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AU - Lindor, Noralane M.

AU - Vadaparampil, Susan T.

N1 - Funding Information: Acknowledgements This work was supported by the Breast Cancer Spore CA 116201 and in part by the Survey Methods Core Facility at the H. Lee Moffitt Cancer Center & Research Institute; a National Cancer Institute designated Comprehensive Cancer Center (P30-CA76292).

PY - 2019/4/15

Y1 - 2019/4/15

N2 - Barriers to genetic counseling services (GCS) utilization for Spanish-speaking patients (SSP) may include language barriers and limited availability of bilingual genetic counselors (GCs). The sample included GCs who: (1) practice cancer genetic counseling, (2) report a cancer practice setting, and (3) have a US mailing address. We assessed: (1) number of Spanish-speaking GCs, (2) estimated proportion of Hispanic patients, and (3) approaches used to counsel SSP. Of respondents (n = 229), 10% (n = 23) spoke Spanish. A higher proportion of GCs practicing in states with ≥ 25% Hispanics reported speaking Spanish compared to those in states with lower Hispanic populations (p = 0.02). While there was a significantly higher percentage of Spanish-speaking GCs in states with larger Hispanic populations, the absolute number was low and unlikely to meet the needs of patients. There is need to increase availability of GCS for SSPs and to understand the impact of services on patient health outcomes.

AB - Barriers to genetic counseling services (GCS) utilization for Spanish-speaking patients (SSP) may include language barriers and limited availability of bilingual genetic counselors (GCs). The sample included GCs who: (1) practice cancer genetic counseling, (2) report a cancer practice setting, and (3) have a US mailing address. We assessed: (1) number of Spanish-speaking GCs, (2) estimated proportion of Hispanic patients, and (3) approaches used to counsel SSP. Of respondents (n = 229), 10% (n = 23) spoke Spanish. A higher proportion of GCs practicing in states with ≥ 25% Hispanics reported speaking Spanish compared to those in states with lower Hispanic populations (p = 0.02). While there was a significantly higher percentage of Spanish-speaking GCs in states with larger Hispanic populations, the absolute number was low and unlikely to meet the needs of patients. There is need to increase availability of GCS for SSPs and to understand the impact of services on patient health outcomes.

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Current Approaches to Cancer Genetic Counseling Services for Spanish-Speaking Patients

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