Challenging misinformation and engaging patients: Characterizing a regenerative medicine consult service

Cambray Smith, Charlene Martin-Lillie, Jennifer Dens Higano, Leigh Turner, Sydney Phu, Jennifer Arthurs, Timothy J. Nelson, Shane Shapiro, Zubin Master

Research output: Contribution to journalArticle

Abstract

Aim: To address the unmet needs of patients interested in regenerative medicine, Mayo Clinic created a Regenerative Medicine Consult Service (RMCS). We describe the service and patient satisfaction. Materials & methods: We analyzed RMCS databases through retrospective chart analysis and performed qualitative interviews with patients. Results: The average patient was older to elderly and seeking information about regenerative options for their condition. Patients reported various conditions with osteoarthritis being most common. Over a third of consults included discussions about unproven interventions. About a third of patients received a clinical or research referral. Patients reported the RMCS as useful and the consultant as knowledgeable. Conclusion: An institutional RMCS can meet patients' informational needs and support the responsible translation of regenerative medicine.

Original languageEnglish (US)
Pages (from-to)1427-1440
Number of pages14
JournalRegenerative Medicine
Volume15
Issue number3
DOIs
StatePublished - Mar 2020

Keywords

  • consultation service
  • ethical
  • evidence-based medicine
  • information for patients
  • patient education
  • patient navigation
  • regenerative medicine education
  • responsible translation
  • unproven stem cell therapies

ASJC Scopus subject areas

  • Biomedical Engineering
  • Embryology

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