Best practices to optimize utilization of the National Living Donor Assistance Center for the financial assistance of living organ donors

Amit K. Mathur, Zoe A. Stewart Lewis, Patricia H. Warren, Marie Claire Walters, Kimberly A. Gifford, Jiawei Xing, Nathan P. Goodrich, Renee Bennett, Ada Brownson, Jill Ellefson, Gerardo Felan, Barrett Gray, Rebecca E. Hays, Cathy Klein-Glover, Shelley Lagreco, Nancy Metzler, Kimberly Provencher, Emily Walz, Kara Warmke, Robert M. MerionAkinlolu O. Ojo

Research output: Contribution to journalArticle

Abstract

Living organ donors face direct costs when donating an organ, including transportation, lodging, meals, and lost wages. For those most in need, the National Living Donor Assistance Center (NLDAC) provides reimbursement to defray travel and subsistence costs associated with living donor evaluation, surgery, and follow-up. While this program currently supports 9% of all US living donors, there is tremendous variability in its utilization across US transplant centers, which may limit patient access to living donor transplantation. Based on feedback from the transplant community, NLDAC convened a Best Practices Workshop on August 2, 2018, in Arlington, VA, to identify strategies to optimize transplant program utilization of this valuable resource. Attendees included team members from transplant centers that are high NLDAC users; the NLDAC program team; and Advisory Group members. After a robust review of NLDAC data and engagement in group discussions, the workgroup identified concrete best practices for administrative and transplant center leadership involvement; for individuals filing NLDAC applications at transplant centers; and to improve patient education about potential financial barriers to living organ donation. Multiple opportunities were identified for intervention to increase transplant programs’ NLDAC utilization and reduce financial burdens inhibiting expansion of living donor transplantation in the United States.

Original languageEnglish (US)
Pages (from-to)25-33
Number of pages9
JournalAmerican Journal of Transplantation
Volume20
Issue number1
DOIs
StatePublished - Jan 1 2020

Keywords

  • donors and donation: living
  • ethics and public policy
  • kidney disease
  • kidney transplantation/nephrology
  • patient education
  • transplant coordinator
  • transplant social worker

ASJC Scopus subject areas

  • Immunology and Allergy
  • Transplantation
  • Pharmacology (medical)

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  • Cite this

    Mathur, A. K., Stewart Lewis, Z. A., Warren, P. H., Walters, M. C., Gifford, K. A., Xing, J., Goodrich, N. P., Bennett, R., Brownson, A., Ellefson, J., Felan, G., Gray, B., Hays, R. E., Klein-Glover, C., Lagreco, S., Metzler, N., Provencher, K., Walz, E., Warmke, K., ... Ojo, A. O. (2020). Best practices to optimize utilization of the National Living Donor Assistance Center for the financial assistance of living organ donors. American Journal of Transplantation, 20(1), 25-33. https://doi.org/10.1111/ajt.15684