Abstract
Objective: Outcomes in multiple myeloma (MM) have significantly improved necessitating focus on survivorship. Methods: We undertook a web-based survey in collaboration with International Myeloma Foundation (IMF) to explore patient awareness and psycho-physical impacts of MM. The survey was viewed on the IMF website by 1,324 individuals from 32 countries. Results: The survey responses were available from 959 individuals, with 62% who completed the survey. Treating doctors were the most frequent source of MM-related information. Only 56% patients admitted full compliance with treatment. Treatment side effects bothered 86% responders, including >50% admitting to pain, peripheral neuropathy and asthenia. Majority (57%) reported some degree of depression, 82% had discontent with their quality of life and only 35% reported being satisfied with their coping mechanisms. Patients ≥65 years of age reported more peripheral neuropathy (p = 0.007) and difficulty with ability to work (p = 0.015). Conclusions: We report the prevalence of psychologic, social and physical domains as well as patient-physician relationship dynamics. This knowledge can help improve MM survivorship.Introduction.
Original language | English (US) |
---|---|
Pages (from-to) | 425-433 |
Number of pages | 9 |
Journal | Journal of Oncology Pharmacy Practice |
Volume | 28 |
Issue number | 2 |
DOIs | |
State | Published - Mar 2022 |
Keywords
- Multiple myeloma
- international
- internet
- survey
- survivorship
ASJC Scopus subject areas
- Oncology
- Pharmacology (medical)