Awareness of myeloma care and the global impact of treatment: An international internet-based prospective study

Sikander Ailawadhi, Abhisek Swaika, Pooja Advani, David Hodge, Aneel Paulus, Nandita D Khera, Shahrukh K. Hashmi, Victoria R. Alegria, Mays Abdulazeez, Srilekha Bodepudi, Khushi Jamwal, Vivek Roy, Taimur Sher, Asher Chanan-Khan, Meghna Ailawadhi

Research output: Contribution to journalArticlepeer-review

Abstract

Objective: Outcomes in multiple myeloma (MM) have significantly improved necessitating focus on survivorship. Methods: We undertook a web-based survey in collaboration with International Myeloma Foundation (IMF) to explore patient awareness and psycho-physical impacts of MM. The survey was viewed on the IMF website by 1,324 individuals from 32 countries. Results: The survey responses were available from 959 individuals, with 62% who completed the survey. Treating doctors were the most frequent source of MM-related information. Only 56% patients admitted full compliance with treatment. Treatment side effects bothered 86% responders, including >50% admitting to pain, peripheral neuropathy and asthenia. Majority (57%) reported some degree of depression, 82% had discontent with their quality of life and only 35% reported being satisfied with their coping mechanisms. Patients ≥65 years of age reported more peripheral neuropathy (p = 0.007) and difficulty with ability to work (p = 0.015). Conclusions: We report the prevalence of psychologic, social and physical domains as well as patient-physician relationship dynamics. This knowledge can help improve MM survivorship.Introduction

Original languageEnglish (US)
JournalJournal of Oncology Pharmacy Practice
DOIs
StateAccepted/In press - 2021

Keywords

  • international
  • internet
  • Multiple myeloma
  • survey
  • survivorship

ASJC Scopus subject areas

  • Oncology
  • Pharmacology (medical)

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