AACAP 2001 research forum: Challenges and recommendations regarding recruitment and retention of participants in research investigations

Stephen P. Hinshaw, Kimberly Hoagwood, Peter S. Jensen, Christopher Kratochvil, Leonard Bickman, Greg Clarke, Howard B. Abikoff, Marc Atkins, Benedetto Vitiello

Research output: Contribution to journalArticle

33 Scopus citations

Abstract

Objective: Clinical research depends on the participation of representative samples. At the 2001 Annual Meeting of the American Academy of Child and Adolescent Psychiatry, the Workgroup on Research conducted a research forum with the purpose of improving recruitment and retention of children and adolescents in research protocols. Method: An interdisciplinary group of participants focused on (1) consumers and families, (2) communities, (3) professionals and health care delivery systems, (4) regulatory bodies, and (5) alternative research designs. Obstacles and challenges were identified and solutions were discussed. Results: Key recommendations include the following: Investigators must become involved with community stakeholders and more explicitly communicate with families about research procedures, risks, and benefits; budgets should include explicit items for case management and referrals to families who do not meet entry criteria; the culture of clinical settings must incorporate research conducted by clinicians; regulatory bodies must streamline and coordinate protocols and procedures; designs emphasizing flexible treatment strategies and adaptive treatments should be encouraged; and health care systems should consider changing incentives for research participation, including the radical notion that reimbursement be made in terms of improvement rather than service units. Conclusions: An integrated approach is recommended, requiring direct involvement of investigators in communities where research is to be conducted.

Original languageEnglish (US)
Pages (from-to)1037-1045
Number of pages9
JournalJournal of the American Academy of Child and Adolescent Psychiatry
Volume43
Issue number8
DOIs
StatePublished - Aug 2004

Keywords

  • Clinical trials
  • Recruitment
  • Regulatory agencies
  • Research
  • Retention
  • Subjects

ASJC Scopus subject areas

  • Developmental and Educational Psychology
  • Psychiatry and Mental health

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