A study to elicit behavioral health patients’ and providers’ opinions on health records consent

Maria Adela Grando, Anita Murcko, Srividya Mahankali, Michael Saks, Michael Zent, Darwyn Chern, Christy Dye, Richard R Sharp, Laura Young, Patricia Davis, Megan Hiestand, Neda Hassanzadeh

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

A main objective of this study is to assess the opinions of 50 behavioral health patients on selective control over their behavioral and physical health information. We explored patients' preferences regarding current consent models, what health information should be shared for care and research and whether these preferences vary based on the sensitivity of health information and/or the type of provider involved. The other objective of this study was to solicit opinions of 8 behavioral health providers on patient-driven granular control of health information and potential impact on care. Electronic surveys were implemented at an outpatient Behavioral Health facility that provides care for behavioral health patients with non-serious mental illnesses. The Patient Survey included questions regarding patients' demographics and about their concerns and preferences for data sharing for care and research. The Provider Survey included questions about their view on the current consent process and perceptions on barriers and facilitators to implement patient-controlled granular consent models. This novel study provides valuable preliminary data that can help guide future studies to better understand privacy choices of this underrepresented patient group.

Original languageEnglish (US)
Pages (from-to)238-259
Number of pages22
JournalJournal of Law, Medicine and Ethics
Volume45
Issue number2
DOIs
StatePublished - Jun 1 2017
Externally publishedYes

Fingerprint

Health
Information Dissemination
Patient Preference
Privacy
Health Facilities
Research
Outpatients
Demography
Delivery of Health Care
Surveys and Questionnaires

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health Policy

Cite this

Grando, M. A., Murcko, A., Mahankali, S., Saks, M., Zent, M., Chern, D., ... Hassanzadeh, N. (2017). A study to elicit behavioral health patients’ and providers’ opinions on health records consent. Journal of Law, Medicine and Ethics, 45(2), 238-259. https://doi.org/10.1177/1073110517720653

A study to elicit behavioral health patients’ and providers’ opinions on health records consent. / Grando, Maria Adela; Murcko, Anita; Mahankali, Srividya; Saks, Michael; Zent, Michael; Chern, Darwyn; Dye, Christy; Sharp, Richard R; Young, Laura; Davis, Patricia; Hiestand, Megan; Hassanzadeh, Neda.

In: Journal of Law, Medicine and Ethics, Vol. 45, No. 2, 01.06.2017, p. 238-259.

Research output: Contribution to journalArticle

Grando, MA, Murcko, A, Mahankali, S, Saks, M, Zent, M, Chern, D, Dye, C, Sharp, RR, Young, L, Davis, P, Hiestand, M & Hassanzadeh, N 2017, 'A study to elicit behavioral health patients’ and providers’ opinions on health records consent', Journal of Law, Medicine and Ethics, vol. 45, no. 2, pp. 238-259. https://doi.org/10.1177/1073110517720653
Grando, Maria Adela ; Murcko, Anita ; Mahankali, Srividya ; Saks, Michael ; Zent, Michael ; Chern, Darwyn ; Dye, Christy ; Sharp, Richard R ; Young, Laura ; Davis, Patricia ; Hiestand, Megan ; Hassanzadeh, Neda. / A study to elicit behavioral health patients’ and providers’ opinions on health records consent. In: Journal of Law, Medicine and Ethics. 2017 ; Vol. 45, No. 2. pp. 238-259.
@article{b908fc95fa024f3f87511815dc902ba8,
title = "A study to elicit behavioral health patients’ and providers’ opinions on health records consent",
abstract = "A main objective of this study is to assess the opinions of 50 behavioral health patients on selective control over their behavioral and physical health information. We explored patients' preferences regarding current consent models, what health information should be shared for care and research and whether these preferences vary based on the sensitivity of health information and/or the type of provider involved. The other objective of this study was to solicit opinions of 8 behavioral health providers on patient-driven granular control of health information and potential impact on care. Electronic surveys were implemented at an outpatient Behavioral Health facility that provides care for behavioral health patients with non-serious mental illnesses. The Patient Survey included questions regarding patients' demographics and about their concerns and preferences for data sharing for care and research. The Provider Survey included questions about their view on the current consent process and perceptions on barriers and facilitators to implement patient-controlled granular consent models. This novel study provides valuable preliminary data that can help guide future studies to better understand privacy choices of this underrepresented patient group.",
author = "Grando, {Maria Adela} and Anita Murcko and Srividya Mahankali and Michael Saks and Michael Zent and Darwyn Chern and Christy Dye and Sharp, {Richard R} and Laura Young and Patricia Davis and Megan Hiestand and Neda Hassanzadeh",
year = "2017",
month = "6",
day = "1",
doi = "10.1177/1073110517720653",
language = "English (US)",
volume = "45",
pages = "238--259",
journal = "Journal of Law, Medicine and Ethics",
issn = "1073-1105",
publisher = "Wiley-Blackwell",
number = "2",

}

TY - JOUR

T1 - A study to elicit behavioral health patients’ and providers’ opinions on health records consent

AU - Grando, Maria Adela

AU - Murcko, Anita

AU - Mahankali, Srividya

AU - Saks, Michael

AU - Zent, Michael

AU - Chern, Darwyn

AU - Dye, Christy

AU - Sharp, Richard R

AU - Young, Laura

AU - Davis, Patricia

AU - Hiestand, Megan

AU - Hassanzadeh, Neda

PY - 2017/6/1

Y1 - 2017/6/1

N2 - A main objective of this study is to assess the opinions of 50 behavioral health patients on selective control over their behavioral and physical health information. We explored patients' preferences regarding current consent models, what health information should be shared for care and research and whether these preferences vary based on the sensitivity of health information and/or the type of provider involved. The other objective of this study was to solicit opinions of 8 behavioral health providers on patient-driven granular control of health information and potential impact on care. Electronic surveys were implemented at an outpatient Behavioral Health facility that provides care for behavioral health patients with non-serious mental illnesses. The Patient Survey included questions regarding patients' demographics and about their concerns and preferences for data sharing for care and research. The Provider Survey included questions about their view on the current consent process and perceptions on barriers and facilitators to implement patient-controlled granular consent models. This novel study provides valuable preliminary data that can help guide future studies to better understand privacy choices of this underrepresented patient group.

AB - A main objective of this study is to assess the opinions of 50 behavioral health patients on selective control over their behavioral and physical health information. We explored patients' preferences regarding current consent models, what health information should be shared for care and research and whether these preferences vary based on the sensitivity of health information and/or the type of provider involved. The other objective of this study was to solicit opinions of 8 behavioral health providers on patient-driven granular control of health information and potential impact on care. Electronic surveys were implemented at an outpatient Behavioral Health facility that provides care for behavioral health patients with non-serious mental illnesses. The Patient Survey included questions regarding patients' demographics and about their concerns and preferences for data sharing for care and research. The Provider Survey included questions about their view on the current consent process and perceptions on barriers and facilitators to implement patient-controlled granular consent models. This novel study provides valuable preliminary data that can help guide future studies to better understand privacy choices of this underrepresented patient group.

UR - http://www.scopus.com/inward/record.url?scp=85041907971&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85041907971&partnerID=8YFLogxK

U2 - 10.1177/1073110517720653

DO - 10.1177/1073110517720653

M3 - Article

VL - 45

SP - 238

EP - 259

JO - Journal of Law, Medicine and Ethics

JF - Journal of Law, Medicine and Ethics

SN - 1073-1105

IS - 2

ER -