A social program for adolescent and young adult survivors of pediatric brain tumors: The power of a shared medical experience

Cori Liptak, Tara Brinkman, Amanda Bronson, Brian Delaney, Christine Chordas, Sarah McCarthy, Andrea Farkas Patenaude, Anna C. Muriel, Peter Manley

Research output: Contribution to journalArticle

4 Scopus citations

Abstract

Survivors of pediatric brain tumors experience several medical and psychosocial late effects including deficits in social competence. This mixed methods study investigated the experience of 19 adolescent and young adult survivors of pediatric brain tumors and 17 parents who participated in a social support program. Qualitative results demonstrated a significant social isolation that was compounded by medical late effects. Survivors perceived social support and acceptance from interactions with peers who have similar medical backgrounds as a key aspect of the group experience. Parents reported increased social confidence among survivors, although they did not report that social gains generalized beyond the group setting. Interventions to promote the transfer of specific social skills are needed.

Original languageEnglish (US)
Pages (from-to)493-511
Number of pages19
JournalJournal of Psychosocial Oncology
Volume34
Issue number6
DOIs
StatePublished - Nov 1 2016
Externally publishedYes

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Keywords

  • adolescent and young adults
  • cancer survivorship
  • pediatric brain tumors
  • psychosocial
  • quality of life

ASJC Scopus subject areas

  • Oncology
  • Applied Psychology
  • Psychiatry and Mental health

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