A randomized practical behavioural trial of curriculum-based advocacy training for individuals with traumatic brain injury and their families

Allen W Brown, Anne M. Moessner, Thomas Bergquist, Kathryn S. Kendall, Nancy N. Diehl, Jayawant Mandrekar

Research output: Contribution to journalArticle

8 Scopus citations

Abstract

Primary objective: To test whether a curriculum-based advocacy training programme improves advocacy behaviour when compared to a matched group engaged in self-directed advocacy activities. Research design: Community-based randomized practical behavioural trial. Methods and procedures: Adults with moderate–severe TBI 1 or more years post-injury and their family members were recruited in Minnesota (4 years), Iowa and Wisconsin (each 3 years) and randomized into a curriculum-based or self-directed advocacy training group. Both groups met on the same day, at separate locations in the same city, once per month for 4 consecutive months. Main outcomes and results: Pre–post written and video testimony were rated using the Advocacy Behaviour Rating Scale (ABRS). Mean ABRS scores increased after intervention in both groups (curriculum n = 129, self-directed n = 128), but there was no significant difference in this increase between groups. When groups were combined, a significant pre–post improvement in mean ABRS scores was observed. Conclusions: Curriculum-based advocacy training was not superior to a self-directed approach in improving ABRS scores. A significant improvement in expression of an advocacy message was observed when intervention groups were combined. These findings suggest that bringing together like-minded motivated individuals is more important than programme structure or content in changing advocacy behaviour.

Original languageEnglish (US)
JournalBrain Injury
DOIs
StateAccepted/In press - Oct 12 2015

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Keywords

  • Consumer advocacy
  • government agencies
  • local government
  • patient advocacy
  • rehabilitation

ASJC Scopus subject areas

  • Clinical Neurology
  • Arts and Humanities (miscellaneous)
  • Developmental and Educational Psychology

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