TY - JOUR
T1 - A framework for practical issues was developed to inform shared decision-making tools and clinical guidelines
AU - Heen, Anja Fog
AU - Vandvik, Per Olav
AU - Brandt, Linn
AU - Montori, Victor M.
AU - Lytvyn, Lyubov
AU - Guyatt, Gordon
AU - Quinlan, Casey
AU - Agoritsas, Thomas
N1 - Funding Information:
Funding/Role of the sponsor: A.F.H. was financially supported by a PhD fellowship from Innlandet Hospital Trust and has received innovation grants from South-Eastern Norway Regional Health Authority . The funding sources had no involvement in study design, collection, analysis, interpretation of data, in writing of the report, or in the decision to submit the article for publication.
Publisher Copyright:
© 2020 The Authors
PY - 2021/1
Y1 - 2021/1
N2 - Objectives: The objective of the study was to develop and test feasibility of a framework of patient-important practical issues. Study Design and Setting: Guidelines and shared decision-making tools help facilitate discussions about patient-important outcomes of care alternatives, but typically ignore practical issues patients consider when implementing care into their daily routines. Using grounded theory, practical issues in the HealthTalk.org registry and in Option Grids were identified and categorized into a framework. We integrated the framework into the MAGIC authoring and publication platform and digitally structured authoring and publication platform and appraised its use in The BMJ Rapid Recommendations. Results: The framework included the following 15 categories: medication routine, tests and visits, procedure and device, recovery and adaptation, coordination of care, adverse effects, interactions and antidote, physical well-being, emotional well-being, pregnancy and nursing, costs and access, food and drinks, exercise and activities, social life and relationships, work and education, travel and driving. Implementation in 15 BMJ Rapid Recommendations added 283 issues to 35 recommendations. The most frequently used category was procedure and device, and the least frequent was social life and relationship. Conclusion: Adding practical issues systematically to evidence summaries is feasible and can inform guidelines and tools for shared decision-making. How this inclusion can improve patient-centered care remains to be determined.
AB - Objectives: The objective of the study was to develop and test feasibility of a framework of patient-important practical issues. Study Design and Setting: Guidelines and shared decision-making tools help facilitate discussions about patient-important outcomes of care alternatives, but typically ignore practical issues patients consider when implementing care into their daily routines. Using grounded theory, practical issues in the HealthTalk.org registry and in Option Grids were identified and categorized into a framework. We integrated the framework into the MAGIC authoring and publication platform and digitally structured authoring and publication platform and appraised its use in The BMJ Rapid Recommendations. Results: The framework included the following 15 categories: medication routine, tests and visits, procedure and device, recovery and adaptation, coordination of care, adverse effects, interactions and antidote, physical well-being, emotional well-being, pregnancy and nursing, costs and access, food and drinks, exercise and activities, social life and relationships, work and education, travel and driving. Implementation in 15 BMJ Rapid Recommendations added 283 issues to 35 recommendations. The most frequently used category was procedure and device, and the least frequent was social life and relationship. Conclusion: Adding practical issues systematically to evidence summaries is feasible and can inform guidelines and tools for shared decision-making. How this inclusion can improve patient-centered care remains to be determined.
KW - Clinical practice guidelines
KW - Decision aids
KW - Patient experience
KW - Patient-important outcomes
KW - Shared decision-making tools
UR - http://www.scopus.com/inward/record.url?scp=85094975168&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85094975168&partnerID=8YFLogxK
U2 - 10.1016/j.jclinepi.2020.10.002
DO - 10.1016/j.jclinepi.2020.10.002
M3 - Article
C2 - 33049326
AN - SCOPUS:85094975168
SN - 0895-4356
VL - 129
SP - 104
EP - 113
JO - Journal of Clinical Epidemiology
JF - Journal of Clinical Epidemiology
ER -